Thrombotic Microangiopathy Symposium in Boston – 24 Aug 2017

Thrombotic Microangiopathy Symposium: Through the Lens of aHUS

24 August 2017 in Boston

 

 

Post-Event Update:

Presentations were videotaped, and appear on YouTube on our Atypical HUS Clinical Channel  as the key asset of 2017 aHUS Awareness Day (24 Sept)  Event Live Blog

Our sincere thanks to all participants & attendees at the Thrombotic Microangiopathy Symposium:  Through the Lens of aHUS.

WATCH the TMA Symposium Presentations:

Atypical HUS Clinical Channel – YouTube:  TMA Boston (playlist)

 

 

The aHUS Alliance is pleased to announce that ‘Thrombotic Microangiopathy Symposium: Through the Lens of aHUS’ will be held on in Boston on 24 August 2017 at the Joseph B. Martin Conference Center at Harvard Medical School*.  The symposium design is unique in its focus on global aHUS patient advocacy coordinated with clinical communications from diverse experts on the broader topics of thrombotic microangiopathy.

 

Physicians from multiple disciplines at academic centers in the city of Boston are partnering with rare disease advocates from the international atypical HUS patient community.  Speakers for the event are experts in the diagnosis, evaluation and treatment of TMA with groundbreaking scientific discoveries and clinical experiences to share. Presenters include Dr. Joel Krier, Dr. Jean Francis, Dr. Craig Gordon, Dr. Nathan Connell, and co-chair for the symposium Dr. Andrew Siedlecki.  Broad issues will be covered such as differentiating diagnosis among TMAs, along with varied topics to include approaches to TMA by specialists (hematology vs nephrology), genomics and impact of mutations, as well as an overview of current and future therapies.

 

Click below for the symposium AGENDA

AGENDA, TMA Symposium 24 August 2017

 

This innovative collaboration between physicians and the aHUS Alliance will offer insights from the patient perspective as well, providing the ‘Patient Voice’ and offering patient engagement to frame and add context to the medical content of the thrombotic microangiopathy symposium.  Timing for this event coordinates with the 3rd annual world aHUS Awareness Day on 24 September 2017. Marked annually on 24 September, aHUS Awareness Day is dedicated to sharing information and insights into the extremely rare disease Atypical Hemolytic Uremic Syndrome and making more visible the needs and issues facing aHUS patients.

 

At the core of patient treatment, caregiver concerns, medical team coordination, and disease research is communication of information and issues.  Join us in Boston on 24 August 2017 to learn the information and gain insight at the Thrombotic Microangiopathy Symposium: Through the Lens of aHUS. 

 

Date:  24 August 2017

Venue:  Joseph B. Martin Conference Center at Harvard Medical Center, Pechet Room

Time:  10:15 to 10:45 am  – Welcome & Registration

Agenda:  (See pdf above) 10:45 am to 4:30 pm  –  Presentations

Twitter:  #TMAboston      Event Hashtag

Follow symposium updates with the aHUS Alliance   @aHUSallianceAct

 

FMI:  Please contact the global action team of the aHUS Alliance

E:   info@aHUSallianceAction.org

Physician Chairperson for the TMA Symposium, Dr. Andrew Siedlecki

E:  asiedlecki@bwh.harvard.edu

 

 

About the aHUS Alliance

 

The aHUS Alliance is an international umbrella group of advocacy groups and individuals dedicated to providing aHUS information, resources, and advocacy initiatives in a connected global network.  Follow us on Twitter @aHUSallianceAct

 

aHUS Awareness Day – 24 Sept 2017     Follow the annual global campaign on Twitter @aHUS24Sept   #aHUS24Sept and #SHUa24Sept

 

* aHUS Alliance Global Action is not affiliated with Harvard University or Brigham and Women’s Hospital, nor is Thrombotic Microangiopathy Symposium: Through the Lens of aHUS a Harvard University or Brigham and Women’s Hospital program or activity.  Medical staff members or other employees of Brigham and Women’s Hospital may participate in this program as faculty members; if so, they are participating on their own behalf and not on behalf of or as a representative of BWH.

 

 

 

 

TMA Symposium – Location:  Joseph B. Martin Conference Center at Harvard Medical Center, Pechet Room  77 Avenue Louis Pasteur,  Boston  MA  02115
(Thrombotic Microangiopathy Symposium: Through the Lens of aHUS is not a Harvard University or Brigham and Women’s Hospital program or activity.)