Atypical HUS Facts – 2017 aHUS Alliance Fact Sheets

 

Looking for the latest 2017 facts and key research about the rare disease atypical hemolytic uremic syndrome (aHUS)?  You’ve found it- the 2017 aHUS Alliance Fact Sheets, offered in two formats (see full description & links below):

1) a brief one page version to print and share, as well as

2) a more comprehensive document that includes our Sept 2017 “aHUS Therapeutic Drug Pipeline” chart along with current aHUS facts and links to specific information and research.

 

The aHUS Alliance, an international umbrella group of patient organizations and aHUS advocates, created these two aHUS Fact Sheets as part of assets offered for world aHUS Awareness Day 2017 campaign.  Founded by the aHUS Alliance in 2015 to raise visibility of rare disease healthcare for aHUS patients and to highlight aHUS research, medical treatment issues, and needs of people living with atypical HUS, our global aHUS Awareness Day campaign each year includes disease-specific  resources and updated, objective information for use in all nations and by all stakeholders.

 

 

 

 

 2017 Brief aHUS Fact Sheet, click HERE.

A print-friendly version, this one page, double-sided overview created by the aHUS Alliance as an international resource of information for all nations, aHUS patient organizations and international aHUS advocates to use in their the Sept 2017 aHUS Awareness Day campaigns.  Easy to understand, this overview of the rare disease aHUS is suitable to distribute at events or meetings, as well as to share with friends or the general public (employers, school staff, and others).

To SHARE this aHUS Alliance 2017 Brief Fact Sheet, here is its short link: http://ow.ly/qBUC30fnFRB

 

 

 

 

2017 aHUS Facts & Key Info, (detailed version) click HERE.

This 11 page document filled with current aHUS information and links to research.  This document was created by the aHUS Alliance in Sept 2017 as a fully curated compilation of key 2017 disease-specific information, serving as a central starting point to start learning about the rare disease atypical HUS.

* Don’t Miss these Highlights & More*

aHUS Drug Development & Pharma Chart – aHUS Therapeutic Pipeline, edition for Sept 2017.  (Starts on page 5)

New Team Approach to Diagnosis & Care:  New Research on the need for a multi-disciplinary care team when treating types of Thrombotic Microangiopathy (see its impact in our blog)

To SHARE this aHUS Alliance 2017 aHUS Facts & Key Info (detailed 11 page document), here is its shortened link:  http://ow.ly/jkbm30fnFSQ

 

 

Learn more about the aHUS Alliance:

A key focus of the aHUS Alliance website is to act as a connecting hub for collaborations in the aHUS arena, and to serve as a platform to provide atypical HUS information and resources of global interest.  Creating disease-specific articles and assets for aHUS patient organizations and advocates worldwide, the aHUS Alliance also serves as an international connecting hub for collaborative efforts. We encourage you to visit our webpage of advocacy in nations around the world, which supports and connects communication to highlight each nation’s patient voice and provides insight into the priorities of each patient organization.

 

Click the link to view our About the aHUS Alliance page.

 

View the aHUS Alliance network of aHUS Clinicians & Investigators .

 

aHUS Alliance – Press Kit

 

aHUS Alliance – Info Centre: Document List