PATIENT ASSOCIATIONS
ARGENTINA SHUA Facebook AUSTRALIA AHUS PATIENT SUPPORT GROUP Globe Facebook Twitter BELGIUM AIRG-BELGIQUE Facebook BRAZIL BRAZILIAN AHUS & TMA STUDY GROUP Globe Facebook BULGARIA Facebook CANADA AHUS CANADA Globe Facebook…
ARGENTINA SHUA Facebook AUSTRALIA AHUS PATIENT SUPPORT GROUP Globe Facebook Twitter BELGIUM AIRG-BELGIQUE Facebook BRAZIL BRAZILIAN AHUS & TMA STUDY GROUP Globe Facebook BULGARIA Facebook CANADA AHUS CANADA Globe Facebook…
Article No. 432 7 May 2021 In the past week or so, the possible trial of a new technology for treating aHUS, that we reported on in website article No…
Atypical HUS Relapse -The Ties that Bind, the third in our original series about aHUS as a lifelong challenge faced by families with a history of this rare disease.
Article No. 375 6 September 2020 Earlier this year, aHUS alliance Global Action wrote to a number of contacts it has around the world. Some information was sought about access…
Article No 366 4 August 2020 An aHUS ROW (Rest of the World) update : Spotlight on aHUS Norway There are many wonderful aHUS associations around the world…
Article No 353 27 June 2020 Participants in the creation of a Global aHUS Patients’ Vision advocated that treatment of aHUS everywhere was needed ( See article HERE ). Everywhere…
Atypical HUS - RESOURCES About aHUS - General Info Info Centre Know aHUS: Know US aHUS PRESS KIT Image Gallery: Atypical HUS info & advocacy Atypical HUS 1.0 - to…
Cleveland Clinic Children’s held its Rare Genetic Disease Symposium on 12 Sept 2019, with 3 aHUS-specific presentations to include the aHUS Alliance on the topic of ‘The Patients’ Perspective’.