PATIENT ASSOCIATIONS

ARGENTINA SHUA Facebook AUSTRALIA AHUS PATIENT SUPPORT GROUP Globe Facebook Twitter BELGIUM AIRG-BELGIQUE Facebook BRAZIL BRAZILIAN AHUS & TMA STUDY GROUP Globe Facebook BULGARIA Facebook CANADA AHUS CANADA Globe Facebook…

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aHUS Relapse: The Ties that Bind

Atypical HUS Relapse -The Ties that Bind, the third in our original series about aHUS as a lifelong challenge faced by families with a history of this rare disease.

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Access to eculizumab

Article No. 375 6 September 2020 Earlier this year, aHUS alliance Global Action wrote to a number of contacts it has around the world. Some information was sought about access…

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aHUS i Norge (aHUS in Norway )

Article No 366 4 August 2020   An aHUS ROW (Rest of the World) update  :  Spotlight on aHUS Norway   There are many wonderful aHUS associations around the world…

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Global aHUS advocacy

Article No 353 27 June 2020 Participants in the creation of a Global aHUS Patients’ Vision advocated that treatment of aHUS everywhere was needed ( See article HERE ). Everywhere…

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