Atypical HUS – Index of KEY RESOURCES

Jump to Section: About aHUS | Special Events | Clinical Information | Networks and Support | Patient Materials & Resources |aHUS Global Advocate:  NEWSLETTER |aHUS alliance Global Action | aHUS…

Continue Reading Atypical HUS – Index of KEY RESOURCES

Atypical HUS – Index of KEY RESOURCES

Jump to Section: About aHUS | Special Events | Clinical Information | Networks and Support | Patient Materials (to Print & Share) |aHUS Global Advocate:  NEWSLETTER |aHUS alliance Global Action…

Continue Reading Atypical HUS – Index of KEY RESOURCES

Atypical HUS & #Nephrology #SoMe

Harnessing the power of Nephrology Social Media – the aHUS Alliance looks back at KidneyWeek 2020 and its ability to inform & engage patient groups as well as medical professionals. How might Patient Experiences become better integrated to improve outreach and understanding for all stakeholders and initiatives?

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ASN, aHUS and the sisters from Missouri

Kidney Week 2019 is currently in progress. The American Society of Nephrology’s  annual event is being held in Washington DC and is attended by delegates from around the World. A…

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Breaking Down Barriers in aHUS Clinical Trials

Break down in communication flows and fragmented outreach have built barriers for research and clinical trial enrollment regarding advancing new options for those with the rare disease atypical HUS (aHUS, or hemolytic uremic syndrome). The aHUS Alliance looks at current challenges, and potential pathways to explore and engage.

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