Is it aHUS? Perhaps it’s TTP, STEC-HUS, or Another TMA
Feeling sick is difficult enough without going to a doctor’s appointment and learning that the diagnosis might possibly be the rare disease atypical hemolytic uremic syndrome, also known as…
Feeling sick is difficult enough without going to a doctor’s appointment and learning that the diagnosis might possibly be the rare disease atypical hemolytic uremic syndrome, also known as…
Jump to Section: About aHUS | Special Events | Clinical Information | Networks and Support | Patient Materials & Resources |aHUS Global Advocate: NEWSLETTER |aHUS alliance Global Action | aHUS…
Jump to Section: About aHUS | Special Events | Clinical Information | Networks and Support | Patient Materials (to Print & Share) |aHUS Global Advocate: NEWSLETTER |aHUS alliance Global Action…
Harnessing the power of Nephrology Social Media – the aHUS Alliance looks back at KidneyWeek 2020 and its ability to inform & engage patient groups as well as medical professionals. How might Patient Experiences become better integrated to improve outreach and understanding for all stakeholders and initiatives?
Atypical HUS - RESOURCES About aHUS - General Info Info Centre Know aHUS: Know US aHUS PRESS KIT Image Gallery: Atypical HUS info & advocacy Atypical HUS 1.0 - to…
Kidney Week 2019 is currently in progress. The American Society of Nephrology’s annual event is being held in Washington DC and is attended by delegates from around the World. A…
These days a kidney transplant may not feature much in the thoughts of new onset aHUS patients, most of them can be saved from a life of chronic end stage…
Break down in communication flows and fragmented outreach have built barriers for research and clinical trial enrollment regarding advancing new options for those with the rare disease atypical HUS (aHUS, or hemolytic uremic syndrome). The aHUS Alliance looks at current challenges, and potential pathways to explore and engage.