PATIENT ASSOCIATIONS

ARGENTINA
SHUA Argentina
Facebook
AUSTRALIA
aHUS Patient Support Group Australia
Facebook, Twitter, Website
BELGIUM
AIRG-Belgique
Twitter, Website
CANADA
aHUS Canada
Facebook, Twitter, Website
CHILE
ASHUA Chile
Facebook
FRANCE
SHUa - Syndrome hémolytique et urémique atypique France
Facebook, Twitter
FRANCE
AIRG-France
Website
GERMANY
Selbsthilfegruppe MPGN und aHUS e.V
Facebook, Twitter, Website
INDIA
Atypical aHUS India
Facebook, Twitter, Website
ITALY
Progetto Alice Onlus Associazione per la lotta alla SEU
Facebook, Website
JAPAN
aHUS Kids Japan
Twitter, Website
MEXICO
ASHUA México
Facebook
PAKISTAN
Atypical Hemolytic Uremic Syndrome (aHUS) Pakistan: Closed Group
Facebook
POLAND
Atypowy Zespół Hemolityczno Mocznicowy
Facebook
ROMANIA
SHUa Romania
Facebook, Twitter
RUSSIA
Another Life
Twitter, Website
SPAIN
ASHUA Spain
Facebook, Website
SWEDEN
AHUS-FFII Sweden
Twitter
THE NETHERLANDS
aHUS Nederland
Twitter, Website
THE NETHERLANDS
Nierpatiënten Vereniging Nederland
Twitter, Website
TURKEY
PNH-aHUS ve DİĞER KOMPLEMAN HASTALIKLARI HASTA DERNEĞİ ÜYELERİNE DUYURU
Website
UNITED KINGDOM
Answers for aHUS
Facebook, Twitter, Website
USA
The Atypical HUS Foundation
Facebook, Twitter, Website
USA
Global aHUS Highlights and Science-based Content
Twitter

Other Connections for aHUS Advocacy

RareConnect – aHUS Global Community, discussion and content available in 8 languages. Patient & Caregiver posts with information and support, created by EURORDIS. https://www.rareconnect.org/en/community/atypical-hemolytic-uremic-syn

aHUS Alliance – An umbrella group of aHUS patient organizations around the world. Highlights of aHUS advocacy, information, and efforts appear on:

Twitter:@aHUSallianceAct, aHUS Awareness Day @aHUS24Sept

Facebook: @aHUSalliance

QUESTIONS? Contact Us Email: info@aHUSallianceaction.org