The topic of ‘changing the name of aHUS’ crops up regularly, so since people keep asking here are details which might help to greater clarity and understanding to this topic.…
It’s amazing how quickly medicine advances. For patients with some diagnoses, it seems like aspects such as new treatments or ‘standard of care’ guidelines can’t move forward quickly enough. It’s…
Scientific advancements in the last decade have yielded promising avenues on multiple fronts, including those related to atypical HUS and other thrombotic microangiopathies. However we’ve now reached a point where…
Article No. 451 4 August 2021 Following on swiftly from Article No. 450 about the current babble of names and need to rename aHUS, aHUS alliance Global Action has been…
There are two sets of patient groups affected by an aHUS name change. Those who have had it and already been diagnosed with it and those who have not yet…
aHUS Day will be on 24th September. It is for all the aHUS/cTMA community. The day has been set to raise awareness of the disease for 11 years now. The…
CAPS or Catastrophic Antiphospholipid Syndrome is an autoimmune and kidney disease which shares the same experience of thrombotic microangiopathy with aHUS/ cTMA. It is a rare life threatening diseases which…
aHUS Global Advocate Newsletter: May 2026 Edition Where can you get aHUS news that’s independent, objective, and focused on what’s important to the atypical HUS community? Here! We’re pleased to…