aHUS Press Kit

Atypical HUS:  PRESS KIT  aHUS Info & Resources Patients sharing their rare disease journey help bring new levels of understanding to researchers, industry, and the general public.  Whether you’re living…

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aHUS Alliance – Press Kit

  Patients sharing their rare disease journey help bring new levels of understanding to researchers, industry, and the general public.  Whether you’re living with atypical HUS or a member of…

Continue Reading aHUS Alliance – Press Kit

aHUS Press Kit

Atypical HUS:  PRESS KIT  aHUS Info & Resources Patients sharing their rare disease journey help bring new levels of understanding to researchers, industry, and the general public.  Whether you’re living…

Continue Reading aHUS Press Kit

Atypical HUS – Index of KEY RESOURCES

Jump to Section: About aHUS | Special Events | Clinical Information | Networks and Support | Patient Materials & Resources |aHUS Global Advocate:  NEWSLETTER |aHUS alliance Global Action | aHUS…

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Atypical HUS – Index of KEY RESOURCES

Jump to Section: About aHUS | Special Events | Clinical Information | Networks and Support | Patient Materials (to Print & Share) |aHUS Global Advocate:  NEWSLETTER |aHUS alliance Global Action…

Continue Reading Atypical HUS – Index of KEY RESOURCES

aHUS Project for 2022 Rare Disease Day

Rare Disease Day 2022: aHUS Alliance Global Action to mark the day with a patient-centered video that focuses on questions posed by those affected by the rare disease atypical HUS.

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24 Sept 2021 – aHUS Awareness Day

The 7th annual aHUS Awareness Day will be marked on 24 September 2021. Created by the aHUS Alliance in 2015 to raise awareness about this life-threatening rare disease, the theme for this year’s aHUS Day is ‘United in Advocacy’. Details the 2021 global campaign to raising awareness of atypical HUS.

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