Sleep Disturbances and Chronic Kidney Disease

 Many people with chronic kidney disease experience sleep disturbances, apparently affecting patients of all ages and many clinical subtypes. Here we present a curated list of information about sleep disorders and kidney disease, providing excerpts to provide an overview of how sleep disorders may have potential to impact atypical HUS patients of various ages and with varied health histories.

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 Mental Wellness:  Insights & Resources

    It’s a casual question people ask all the time, “How’s it going?” and the usual response is “Fine”. Even when that’s not true. Challenges continually appear in life,…

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Kamal is an aHUS Super Hero

Kamal Shah is a Director/Trustee of aHUS alliance Global Action. He first had aHUS over 25 years ago. It was triggered by vaccinations needed to go to the USA to…

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Side effects of ravulizimab between infusions

Ravulizumab is more widely used these days, particularly in the PNH community. Apart from the longer infusion intervals PNH patients benefit from higher dose levels that stop breakthrough haemolysis which,…

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Long term aHUS effects

Long term aHUS disease, diagnosis and treatment legacies on both physical and mental health have featured in two aHUS Patient Research Agenda topics. The damage to the body during an…

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LONG aHUS

aHUS alliance Global Action has previously brought up the concept of "Long aHUS " in its articles during the COVID pandemic. An enormous amount of publicity has been given to…

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Follow up on aHUS/COVID19 JAbs Follow Up

Article No. 414 28 January 2021 A further update on the issue of aHUS and COVID 19 vaccinations from the author’s  experience. The author had the Oxford-AstraZeneca COVID 19 vaccine in…

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