4 Myths of Rare Disease Advocacy: Part 2

    The SECOND Article in a Four Part Series Rare Disease Advocacy:  Digging deeper into Common Misperceptions   Although there are over 7000 rare diseases, rare patient populations affected…

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4 MYTHS of Rare Disease Advocacy

              The FIRST Article in a Four Part Series Rare Disease Advocacy:  Digging deeper into Common Misperceptions     Although there are over 7000…

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aHUS Alliance – Press Kit

  Patients sharing their rare disease journey help bring new levels of understanding to researchers, industry, and the general public.  Whether you’re living with atypical HUS or a member of…

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