Creating Your Advocacy Footprint in the Rare Disease Arena
What does the term ‘rare disease advocacy’ mean to you? Patients and caregivers speaking up on social media or at various meetings, addressing needs for a particular rare…
What does the term ‘rare disease advocacy’ mean to you? Patients and caregivers speaking up on social media or at various meetings, addressing needs for a particular rare…
The Last in the aHUS Alliance Four Part Series Patients Included: Reality or Unmet Goal? 4 MYTHS of Rare Disease Advocacy: Digging deeper into Common Misperceptions Although…
The SECOND Article in a Four Part Series Rare Disease Advocacy: Digging deeper into Common Misperceptions Although there are over 7000 rare diseases, rare patient populations affected…
The FIRST Article in a Four Part Series Rare Disease Advocacy: Digging deeper into Common Misperceptions Although there are over 7000…
Patients sharing their rare disease journey help bring new levels of understanding to researchers, industry, and the general public. Whether you’re living with atypical HUS or a member of…
The aHUS Alliance presents an overview of a small segment of orphan drug research and development, with the potential for advancements in 2017 that may bring new therapeutic drugs…