The name atypical hemolytic uremic syndrome is being replaced. Complement mediated thrombotic microangiopathy is becoming a popular choice. The first term is explicitly associated with kidney disease, the second term…
What’s new in aHUS research? Quite a bit, if you consider that over four dozen publications have just been added to our aHUS-specific ‘Virtual Library’. There’s a reason we’re so…
KDIGO met again to progress, through controversial means, knowledge of aHUS, or what ever it is called these days. There were 61 questions asked on 14 aspects of the so…
Until eight years ago China had no policy on the care of people with rare diseases. There were discussions about it . Then not only was rare defined but a…
From start to finish it’s been a busy year in the global ‘aHUS space’ yet before we say hello to 2026 issued our December 2025 edition of The aHUS Global…
2025 – SEPT – 2026 Atypical HUS: Fact Sheet Atypical Hemolytic Uremic Syndrome – a Rare Disease Information and medical knowledge can change rapidly, which can be problematic for…
It is said that thrombomodulin, or TM (AKA THBD) ,or CD141, plays only an indirect part in TMA (thrombotic microangiopathy) . TM is something which is ubiquitously spread on the…
2025 aHUS Awareness Day Project - Watch it at this Link https://bit.ly/2025aHUS24Sept aHUS AWARENESS DAY 24 September – an annual day to highlight the issues, challenges, and remarkable individuals within…