Can MedEd Encourage Specialists to Form TMA Teams? Tiny clots which form in the body’s small blood vessels - in brief, that’s how thrombotic microangiopathy can damage vital organs such…
If asked by health policy decision makers, and with a 500 words limit, how would you answer the question "how does aHUS affect the lives of people living with it…
aHUS Awareness Day 2021 - Answers to FAQs Finding information about any rare disease is challenging, and perhaps more so for an ultra rare disease such as atypical hemolytic uremic…
People with atypical HUS need urgent care during periods of disease activity, with treatment when needed for as long as needed. But how is such optimal care duration determined, and…
Article No. 449 28 July 2021 It is five years on since the article below about a little girl in India featured on our website. Ananya died waiting for a…
24 Sept 2021 will mark the 7th aHUS Awareness Day. Learn more about the 2021 aHUS day project to showcase global patient experiences.
The 7th annual aHUS Awareness Day will be marked on 24 September 2021. Created by the aHUS Alliance in 2015 to raise awareness about this life-threatening rare disease, the theme for this year’s aHUS Day is ‘United in Advocacy’. Details the 2021 global campaign to raising awareness of atypical HUS.
Article No. 435 20 May 2021 There is a saying that "you can wait ages for a London bus but then two or three will come along together" It feels…