You have had aHUS. The type of aHUS caused by uncontrolled complement, not the other type. You got access to a complement inhibitor. It WORKED. You tolerated the drug. Your…
Atypical HUS & Travel: Planning a trip for work or pleasure? A look at minimizing risks while maximizing a smooth travel adventure.
Last year Global Action brought attention to a research article ( Closing the CaHUS knowledge gap ) which stood out as one of the best contributions to aHUS knowledge we…
An in depth exploration of the aHUS Patients' Global Research Agenda, this series of articles dives deeply into 15 key questions that patients & caregivers would like researchers and clinicians…
Atypical HUS – research updates for Feb 2024
Have you ever seen or read the medication guidance for using Eculizumab, or even Ravulizumab? There is one in every vial carton containing these medications. When it is unfolded it…
During December and January last, there has been a review of each of the 15 topics in the patients research agenda. Many of the topics were included in the first…
It’s 2024. A New Year.This year around the world about 4000 people will newly onset with the primary form of aHUS. About 1200 of them will be living in China…