As children with kidney disease grow to become adolescents, their medical care often changes from a pediatric to adult nephrology care setting – what common issues for teen patients surround this transition? A look at social, emotional, and medical aspects.
Activity-based programs are a great for children to explore interest areas, learn new skills, and enjoy interactions with other children. What should coaches, camp directors, and youth program leaders know when activities include a child diagnosed with a rare disease like atypical HUS (aHUS)?
The aHUS Alliance recently conducted an interview with Dr Ralf Reski, a professor and researcher in the field of moss-made biopharmaceuticals. Of particular interest to us is Moss-FH,…
Exploring your Questions, Rare Disease Day 2017 Children living with the rare disease atypical HUS are first and foremost children. Despite sharing common medical challenges with adult aHUS patients, it’s…