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Skin & Atypical HUS: Thrombotic Microangiopathy in aHUS

Skin involvement and thrombotic microangipathy: a consideration for atypical HUS patient care.

aHUS meningococcal infection – vigilance essential

All aHUS patients know that when on complement inhibitor treatment they are at risk of meningococcal infection. Do they? Of course, they are told about it before they get treatment.…

Atypical HUS – RESOURCES

aHUS what is really happening?

Listening to some aHUS people on social media there is a sense that all are not satisfied with what is happening to them healthwise . This is what underpins two…

Rare Disease Day 2023- aHUS Community Project

On February 28, 2023, the world will join together to raise awareness for rare diseases like atypical HUS. Recognized annually on the last day of February, Rare Disease Day encourages…

Study of the aHUS Diagnosis Process- the “whys”, “whats” and “hows”

It is now over two years ago that Global Action began a major study of the aHUS Diagnosis Process, it is well over a year ago since the first report…

aHUS adverse events reporting

So adverse events are being reported. In USA over 4500 per year on average for eculizumab are reported to the FDA and just over 400 per year for ravulizumab. But…

Maternal Fetal Medicine: Collaborative Partnerships in TMA Care

We were pleased to recently welcome Dr Richard Burwick (California, USA) to our global network of aHUS clinicians and investigators. Some may wonder why a physician whose specialty area is…

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