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Skin & Atypical HUS: Thrombotic Microangiopathy in aHUS

Skin involvement and thrombotic microangipathy: a consideration for atypical HUS patient care.

Adverse events – aHUS Agenda Topic 11

Although people’s experiences differ both treatment and long term effects of aHUS can be detected by patients. Patients have asked : Can the side effects of treatment using a complement…

Atypical HUS – Index of KEY RESOURCES

aHUS meningococcal infection – vigilance essential

All aHUS patients know that when on complement inhibitor treatment they are at risk of meningococcal infection. Do they? Of course, they are told about it before they get treatment.…

Atypical HUS – Index of KEY RESOURCES

aHUS what is really happening?

Listening to some aHUS people on social media there is a sense that all are not satisfied with what is happening to them healthwise . This is what underpins two…

Rare Disease Day 2023- aHUS Community Project

On February 28, 2023, the world will join together to raise awareness for rare diseases like atypical HUS. Recognized annually on the last day of February, Rare Disease Day encourages…

Study of the aHUS Diagnosis Process- the “whys”, “whats” and “hows”

It is now over two years ago that Global Action began a major study of the aHUS Diagnosis Process, it is well over a year ago since the first report…

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Skin & Atypical HUS: Thrombotic Microangiopathy in aHUS

Adverse events – aHUS Agenda Topic 11

Atypical HUS – Index of KEY RESOURCES

aHUS meningococcal infection – vigilance essential

Atypical HUS – Index of KEY RESOURCES

aHUS what is really happening?

Rare Disease Day 2023- aHUS Community Project

Study of the aHUS Diagnosis Process- the “whys”, “whats” and “hows”

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