Especially with very rare diseases such as atypical HUS, medical research and education efforts are keys to unlocking information that’s critical for diagnosis and for management of patient care. It’s…
Feeling sick is difficult enough without going to a doctor’s appointment and learning that the diagnosis might possibly be the rare disease atypical hemolytic uremic syndrome, also known as…
Exploring your Questions, Rare Disease Day 2017 Children living with the rare disease atypical HUS are first and foremost children. Despite sharing common medical challenges with adult aHUS patients, it’s…
Questions relating to alternatives to eculizumab for aHUS ,and where those developments were up to, featured within many questions about eculizumab itself in the Rare Disease Day Video. Urijah of…
It’s difficult for rare disease patients to find information about their condition and even more so for patients with medical conditions that affect very small numbers of people, like…
The KDIGO Controversies Conference on Complement-Mediated Kidney Disease was held November 19-21 2015 in Barcelona Spain. KDIGO’s mission is to improve global outcomes for kidney disease, to include this…
An onset of aHUS although predominantly associated with kidney failure, as the "U" for Uraemic relates, the Haemolytic activity also causes problems in other major organs. In the run in…