aHUS Global Action – Meet Trustee K Grey
As advocates for the rare disease atypical haemolytic uraemic syndrome (atypical HUS), there’s only one group of patients and caregivers whose…
As advocates for the rare disease atypical haemolytic uraemic syndrome (atypical HUS), there’s only one group of patients and caregivers whose…
Article No. 456 From today the aHUS alliance Global Action website has a new look. Just over five years since it…
Article No. 421 1 March 2021 There is no doubt that with the response by the aHUS Patient community to the…
Article No 394 23 November 2020 In an article on 16 October 2020 (No 388) aHUS Global Action derived a cost…
Another year has ended for those affected by aHUS. For some sadly it would have proven to have been their last.…
aHUS and TMA Study Centers An International List Compiled by the aHUS Alliance Atypical HUS is difficult…
What happens after the world annually marks Rare Disease Day on the last day of February? We carry on…
The Last in the aHUS Alliance Four Part Series Patients Included: Reality or Unmet Goal? 4 MYTHS of Rare…
4 MYTHS of Rare Disease Advocacy: Digging deeper into Common Misperceptions Pathways of Patient Engagement & Recruitment…