Welcome to the aHUS Alliance Global Action’s Information Centre!

Containing a stock of information resources about atypical Haemolytic Uraemic Syndrome (aHUS)  gathered from around the world, this ‘virtual library’ is designed to accommodate continuous updates of new material over time. Resources are aHUS-specific and act as a global repository for information useful to patient organisations, clinicians, health organisations, and the media.

Featured below is a collection of assets which include downloadable documents, resource links, or other aHUS information. We welcome you to browse our aHUS Alliance Press Kit.
If you are having difficulty finding specific aHUS information resources then click on  the enquiries tool ( looks like a magnifying glass) in the right hand corner of the page and a search box will appear. Just type in what you are looking for.
If  you wish to offer suggestions or make inquiries about the Information Centre, please contact us at info@aHUSAllianceAction.org.
Life experiences with aHUS

Research/Publications
aHUS Research & Publications
Organized by Topic
Resources
Clinical Network, Study Centers, Fact Sheets, Clinical Tracker, Key Informational Assets, Our Newsletters
Patient Research Agenda & 2016 Poll Data
Patient-led Int’l Consensus of aHUS Research Interest Areas
Press Kit
Materials & Assets to provide Info and insight
 
aHUS Awareness Day & Rare Disease Day
24 Sept is aHUS Day
Projects & Resources
Video & Audio
Clinical presentations Advocacy Group & Family Video
SHUa: en Español
aHUS Materials (SPANISH)
SHUa: En français
aHUS Materials (FRENCH)
Social Media
Twitter, Facebook
Image Gallery