Info Centre


Welcome to the aHUS Alliance Global Action’s Information Centre!

Containing a stock of information resources about atypical Haemolytic Uraemic Syndrome (aHUS)  gathered from around the world, this ‘virtual library’ is designed to accommodate continuous updates of new material over time. Resources are aHUS-specific and act as a global repository for information useful to patient organisations, clinicians, health organisations, and the media.

Featured below is a collection of assets which include downloadable documents, resource links, or other aHUS information. We welcome you to browse our aHUS Alliance Press Kit.

If you are having difficulty finding specific aHUS information resources then click on  the enquiries tool ( looks like a magnifying glass) in the right hand corner of the page and a search box will appear. Just type in what you are looking for.

If  you wish to offer suggestions or make inquiries about the Information Centre, please contact us at

Life experiences with aHUS


aHUS Research & Publications
Organized by Topic


Clinical Network, Study Centers, Fact Sheets, Clinical Tracker, Key Informational Assets, Our Newsletters

Patient Research Agenda & 2016 Poll Data

Patient-led Int’l Consensus of aHUS Research Interest Areas

Press Kit

Materials & Assets to provide Info and insight


aHUS Awareness Day & Rare Disease Day

24 Sept is aHUS Day
Projects & Resources

Video & Audio

Clinical presentations Advocacy Group & Family Video

SHUa: en Español

aHUS Materials (SPANISH)

SHUa: En français

aHUS Materials (FRENCH)

Social Media

Twitter, Facebook
Image Gallery