Would patients and pharma compromise on a new name for aHUS (2)
The discussion on a new name for aHUS moves on from clinicians to whether pharma and patients might view a compromise…
Would experts compromise on a new name for aHUS (1)
Is there room at this stage for some compromise on a new name for aHUS? Would something like cTMA-HUS or even…
Have you voted yet?
Do you want the name aHUS to go? Because they are going to change it. Do you want to have your…
aHUS a Physician Patient Partnership or Not
Not many people will have heard of Donal O'Donoghue, He was a nephrologist from the North of England. He was a…
What’s New in aHUS Research: August 2026 Edition
Once more the aHUS Alliance Global Action team presents a brief overview of new publications just added to our ‘Atypical HUS…
DGKE is NOT a cTMA , DGKE is its own COMMUNITY
As any DGKE patient old enough or any family members know it is simply that : p.Trp322* (c966 D>A) is one…
Primary and Secondary aHUS? Does it really matter?
The question should be why do some triggers kick off a complement only TMA ( Primary aHUS ) and yet can…
aHUS Global Advocate Newsletter: Aug 2026 Edition
We’re pleased to announce that our latest edition of The aHUS Global Advocate newsletter has been released (Vol 14, August 2026)…
Can an inclusive composite name be found?
This complex illustration covers all the main elements of thrombotic microangiopathies, and body organs affected by them. They include complement TMA…
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