News on Mental Health & Rare Diseases
Our aHUS Alliance Global Action team recently received an email from the people at RareMinds, a UK-based organization whose mission in…
aHUS Newsletter: May 2026 Edition
aHUS Global Advocate Newsletter: May 2026 Edition Where can you get aHUS news that’s independent, objective, and focused on what’s important…
aHUS Research Updates – April 2026
What’s new in aHUS research? Quite a bit, if you consider that over four dozen publications have just been added to…
Rare but Real: How Common is Atypical HUS?
How rare is ‘aHUS Rare’? If you or a loved one has been diagnosed with atypical HUS, it’s likely the medical…
Since You Asked: aHUS NOMENCLATURE
The topic of ‘changing the name of aHUS’ crops up regularly, so since people keep asking here are details which might…
Rare Disease Day 2026: Many Voices, One Global Movement
Rare Disease Day 2026: Many Voices, One Global Movement Since 2015, the aHUS Alliance Global Action team has been right there…
The Hidden Burdens: Living with Atypical HUS
Hidden Burdens: Living with aHUS When most people hear about a rare disease diagnosis they think primarily about medical challenges, but…
aHUS Global Advocate: Dec 2025 Newsletter
From start to finish it’s been a busy year in the global ‘aHUS space’ yet before we say hello to 2026…
What’s New in aHUS Research – Dec 2025 Edition
Keeping track of medical advancements in the rare disease space is challenging, but for those interested in atypical HUS the aHUS…
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