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Author: Linda Burke

This author has written 22 articles
Home » Archives for Linda Burke
Read more about the article Atypical HUS:  Listen, Comprehend, Act

Atypical HUS:  Listen, Comprehend, Act

  • Post author:Linda Burke
  • Post published:July 2, 2022
  • Post category:News
  • Post comments:0 Comments

It’s been quite an unsettling end to the first half of 2022 within the atypical HUS community, as July 2022 has…

Continue ReadingAtypical HUS:  Listen, Comprehend, Act
Read more about the article Accessible to all: aHUS Research

Accessible to all: aHUS Research

  • Post author:Linda Burke
  • Post published:June 22, 2022
  • Post category:News
  • Post comments:0 Comments

Atypical HUS Research, view over 900 aHUS-specific publications categorized by topic, compiled by the aHUS Alliance Global Action team.

Continue ReadingAccessible to all: aHUS Research
Read more about the article Atypical HUS PROs: Patient Reported Outcomes

Atypical HUS PROs: Patient Reported Outcomes

  • Post author:Linda Burke
  • Post published:March 18, 2022
  • Post category:featured
  • Post comments:0 Comments

What are patient reported outcomes (PROS)? The aHUS Alliance Global Action team look at PROs and their importance in the aHUS space.

Continue ReadingAtypical HUS PROs: Patient Reported Outcomes
Read more about the article RD Day 2022: aHUS Webinar hosted by AKF

RD Day 2022: aHUS Webinar hosted by AKF

  • Post author:Linda Burke
  • Post published:February 12, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

In honor of this year's Rare Disease Day on February 28, the American Kidney Fund (AKF) will be hosting “Rare Disease…

Continue ReadingRD Day 2022: aHUS Webinar hosted by AKF
Read more about the article It’s Time to re-Define aHUS Patient Engagement

It’s Time to re-Define aHUS Patient Engagement

  • Post author:Linda Burke
  • Post published:December 13, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

Reaching out to Bridge Current Gaps As complement research has progressed and more is understood about thrombotic microangiopathy, it’s interesting that…

Continue ReadingIt’s Time to re-Define aHUS Patient Engagement
Read more about the article Atypical HUS CAREGIVERS

Atypical HUS CAREGIVERS

  • Post author:Linda Burke
  • Post published:November 13, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

Atypical HUS families emphasize and embody the ‘care’ portion of the word ‘caregiver’. Many of those caring for someone with atypical…

Continue ReadingAtypical HUS CAREGIVERS
Read more about the article TMA: the Need for a Multidisciplinary Team Approach

TMA: the Need for a Multidisciplinary Team Approach

  • Post author:Linda Burke
  • Post published:November 5, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

Can MedEd Encourage Specialists to Form TMA Teams? Tiny clots which form in the body’s small blood vessels - in brief,…

Continue ReadingTMA: the Need for a Multidisciplinary Team Approach
Read more about the article 2021 FAQs – FACTS about Atypical HUS

2021 FAQs – FACTS about Atypical HUS

  • Post author:Linda Burke
  • Post published:September 19, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

aHUS Awareness Day 2021 - Answers to FAQs Finding information about any rare disease is challenging, and perhaps more so for…

Continue Reading2021 FAQs – FACTS about Atypical HUS
Read more about the article aHUS Relapse Epilogue: Patient Monitoring

aHUS Relapse Epilogue: Patient Monitoring

  • Post author:Linda Burke
  • Post published:August 19, 2021
  • Post category:featured
  • Post comments:0 Comments

People with atypical HUS need urgent care during periods of disease activity, with treatment when needed for as long as needed.…

Continue ReadingaHUS Relapse Epilogue: Patient Monitoring
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