A global aHUS patient organisation connecting, informing and collaborating to provide awareness, help, understanding and support for aHUS patient advocacy everywhere.
The aHUS Alliance Action Newsletter
aHUS Awareness Day & Rare Disease Day
Articles: News & Views
aHUS Trial Watch 14
A trial has been designed by Alexion to examine the efficacy of Ravulizumab to treat…
One genetic problem but two diseases
Take "diacylglycerol kinase " and add a "syndrome" throw in a letter from the Greek…
Atypical HUS CAREGIVERS
Atypical HUS families emphasize and embody the ‘care’ portion of the word ‘caregiver’. Many of…
Our Mission
Statement
The aHUS alliance, through the collaboration of its affiliates will promote global awareness of aHUS, will work with international aHUS researchers and, by supporting newly emerging national aHUS patient groups, will bring relief and support to those affected by aHUS to save, and improve the quality of, more lives.
Support aHUS Alliance Action
You can support this trust of only volunteers in our quest to support aHUS patients and their family worldwide by making a donation through Paypal
