Genetic mutations strong or weak
In this model of the aHUS patient the concept of strong or weak aHUS disease causing genetic mutations is deployed not…
Precise and tailored- needed or not- surviving to thriving
It is fashionable these days to talk about precision medicine and tailor made/ personalised medicine. Whilst it is easy to say…
Every aHUS patient is in there somewhere.
aHUS alliance Global Action came up with this table describing aHUS patients position within a matrix of triggers and mutations guiding…
Thailand enters Global aHUS Town
A chance meeting at an American Kidney Fund conference a few days ago alerted us to aHUS patients in Thailand. So…
What aHUS patients think about a name change
If the name aHUS is to be changed and it remains a big IF as it remains in a state of…
Who are the aHUS persons requiring specific treatment.
It is clear that amongst the hullabaloo about aHUS renaming it was not those aHUS persons with known complement mutations, or…
New name plans what the aHUS community think about them
It is aHUS Awareness Day (it started in Tuvalu first!) . The theme for this Awareness Day is the plan for…
Child’s ravulizumab adverse event no one cares
Hey I have a daughter with aHUS treated with ravulizumab and every week before her next infusion her behaviour changes and…
Cause v Effect- cTMA v aHUS
This image illustrates what the debate about renaming our disease is about- cause or effect. On the left is the complement…
- 1
- 2
- 3
- 4
- …
- 32
- Go to the next page