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Author: Len Woodward

This author has written 274 articles
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  2. Len Woodward
Read more about the article Child’s ravulizumab adverse event no one cares

Child’s ravulizumab adverse event no one cares

  • Post author:Len Woodward
  • Post published:September 19, 2026
  • Post category:News
  • Post comments:0 Comments

Hey I have a daughter with aHUS treated with ravulizumab and every week before her next infusion her behaviour changes and…

Continue ReadingChild’s ravulizumab adverse event no one cares
Read more about the article Cause v Effect- cTMA v aHUS

Cause v Effect- cTMA v aHUS

  • Post author:Len Woodward
  • Post published:September 17, 2026
  • Post category:Featured
  • Post comments:0 Comments

This image illustrates what the debate about renaming our disease is about- cause or effect. On the left is the complement…

Continue ReadingCause v Effect- cTMA v aHUS
Read more about the article A key issue why a name change will impact – Taylor and Len chat

A key issue why a name change will impact – Taylor and Len chat

  • Post author:Len Woodward
  • Post published:September 12, 2026
  • Post category:Featured
  • Post comments:0 Comments

Taylor Coffman and Len Woodward  are two public aHUS patient advocates who write about aHUS and the patient experience of living…

Continue ReadingA key issue why a name change will impact – Taylor and Len chat
Read more about the article New aHUS name it is like squaring the circle

New aHUS name it is like squaring the circle

  • Post author:Len Woodward
  • Post published:September 9, 2026
  • Post category:Featured
  • Post comments:0 Comments

Hey what's new? I have found out something new , did you know that aHUS is not the official name for…

Continue ReadingNew aHUS name it is like squaring the circle
Read more about the article Would patients and pharma compromise on a new name for aHUS (2)

Would patients and pharma compromise on a new name for aHUS (2)

  • Post author:Len Woodward
  • Post published:September 5, 2026
  • Post category:Uncategorized
  • Post comments:0 Comments

The discussion on a new name for aHUS moves on from clinicians to whether pharma and patients might view a compromise…

Continue ReadingWould patients and pharma compromise on a new name for aHUS (2)
Read more about the article Would experts compromise on a new name for aHUS (1)

Would experts compromise on a new name for aHUS (1)

  • Post author:Len Woodward
  • Post published:September 5, 2026
  • Post category:Events/Featured
  • Post comments:0 Comments

Is there room at this stage for some compromise on a new name for aHUS? Would something like cTMA-HUS or even…

Continue ReadingWould experts compromise on a new name for aHUS (1)
Read more about the article Have you voted yet?

Have you voted yet?

  • Post author:Len Woodward
  • Post published:September 2, 2026
  • Post category:News
  • Post comments:0 Comments

Do you want the name aHUS to go? Because they are going to change it. Do you want to have your…

Continue ReadingHave you voted yet?
Read more about the article aHUS a Physician Patient Partnership or Not

aHUS a Physician Patient Partnership or Not

  • Post author:Len Woodward
  • Post published:August 30, 2026
  • Post category:Featured
  • Post comments:0 Comments

Not many people will have heard of Donal O'Donoghue, He was a nephrologist from the North of England. He was a…

Continue ReadingaHUS a Physician Patient Partnership or Not
Read more about the article DGKE is NOT a cTMA , DGKE is its own COMMUNITY

DGKE is NOT a cTMA , DGKE is its own COMMUNITY

  • Post author:Len Woodward
  • Post published:August 26, 2026
  • Post category:Featured
  • Post comments:0 Comments

As any DGKE patient old enough or any family members know it is simply that : p.Trp322* (c966 D>A) is one…

Continue ReadingDGKE is NOT a cTMA , DGKE is its own COMMUNITY
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