What would aHUS look like to the patients yet to onset.
There are two sets of patient groups affected by an aHUS name change. Those who have had it and already been…
Grumbling aHUS
Hi my aHUS just grumbles. Hi just grumbles you say. Yes it like smoulders not going out, then bubbles up ,…
Knowledge of aHUS – a Mountain to Climb
When it comes to knowledge of rare diseases patients are frequently critical of the level of knowledge of their treating clinicians.…
A CALL for aHUS/cTMA community support for an aHUS Day event.
aHUS Day will be on 24th September. It is for all the aHUS/cTMA community. The day has been set to raise…
Mindful or minding RBCs after aHUS
Those with a chronic disease, whether in remission or not, remain mindful or minding what clinical tests are telling them about…
More countries for Global aHUS Town
Since our last report on Global aHUS Town very little has changed in the number of countries who are now aHUS…
Helping another TMA’s Initiative- CAPS
CAPS or Catastrophic Antiphospholipid Syndrome is an autoimmune and kidney disease which shares the same experience of thrombotic microangiopathy with aHUS/…
ERKNET and TMA patients in Europe
Very little is heard from ERKNet (European Rare Kidney Disease Network) these days. Global Action used to have articles about its…
Why a vaccine is such a controversy in aHUS/cTMA
Vaccines simulate a specific infection and through a well developed process stimulate the adaptive immune system to create antibodies and killer…
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