aHUS a Physician Patient Partnership or Not
Not many people will have heard of Donal O'Donoghue, He was a nephrologist from the North of England. He was a…
DGKE is NOT a cTMA , DGKE is its own COMMUNITY
As any DGKE patient old enough or any family members know it is simply that : p.Trp322* (c966 D>A) is one…
Primary and Secondary aHUS? Does it really matter?
The question should be why do some triggers kick off a complement only TMA ( Primary aHUS ) and yet can…
Can an inclusive composite name be found?
This complex illustration covers all the main elements of thrombotic microangiopathies, and body organs affected by them. They include complement TMA…
aHUS may not always happen without 3 hits
Although it is thought it might, aHUS does not always happen. It needs 3 hits. It is known that aHUS is…
What would aHUS look like to the patients yet to onset.
There are two sets of patient groups affected by an aHUS name change. Those who have had it and already been…
Grumbling aHUS
Hi my aHUS just grumbles. Hi just grumbles you say. Yes it like smoulders not going out, then bubbles up ,…
Knowledge of aHUS – a Mountain to Climb
When it comes to knowledge of rare diseases patients are frequently critical of the level of knowledge of their treating clinicians.…
A CALL for aHUS/cTMA community support for an aHUS Day event.
aHUS Day will be on 24th September. It is for all the aHUS/cTMA community. The day has been set to raise…
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