Would patients and pharma compromise on a new name for aHUS (2)
The discussion on a new name for aHUS moves on from clinicians to whether pharma and patients might view a compromise…
Would experts compromise on a new name for aHUS (1)
Is there room at this stage for some compromise on a new name for aHUS? Would something like cTMA-HUS or even…
Have you voted yet?
Do you want the name aHUS to go? Because they are going to change it. Do you want to have your…
aHUS a Physician Patient Partnership or Not
Not many people will have heard of Donal O'Donoghue, He was a nephrologist from the North of England. He was a…
DGKE is NOT a cTMA , DGKE is its own COMMUNITY
As any DGKE patient old enough or any family members know it is simply that : p.Trp322* (c966 D>A) is one…
Primary and Secondary aHUS? Does it really matter?
The question should be why do some triggers kick off a complement only TMA ( Primary aHUS ) and yet can…
Can an inclusive composite name be found?
This complex illustration covers all the main elements of thrombotic microangiopathies, and body organs affected by them. They include complement TMA…
aHUS may not always happen without 3 hits
Although it is thought it might, aHUS does not always happen. It needs 3 hits. It is known that aHUS is…
What would aHUS look like to the patients yet to onset.
There are two sets of patient groups affected by an aHUS name change. Those who have had it and already been…
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