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Read more about the article RDD23 VIDEO – RESULTS REPORT

RDD23 VIDEO – RESULTS REPORT

  • Post author:Len Woodward
  • Post published:March 18, 2023
  • Post category:Featured
  • Post comments:0 Comments

WWW.AHUSALLIANCEGLOBALACTION.ORG 18 March 2023 aHUS PATIENTS' VIEWS ON THE ATTRIBUTION OF ADVERSE EVENTS /SIDE EFFECTS EXPERIENCED DUE TO EITHER THEIR PRIMARY…

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Read more about the article Is incidence of aHUS  really “2 per million”?

Is incidence of aHUS really “2 per million”?

  • Post author:Len Woodward
  • Post published:March 10, 2023
  • Post category:Featured/News
  • Post comments:0 Comments

I know it should not matter so much but whenever I see incidence and prevalence figures for aHUS in articles etc,…

Continue ReadingIs incidence of aHUS really “2 per million”?
Read more about the article The aHUS Global Advocate: Our Vol 6 Newsletter

The aHUS Global Advocate: Our Vol 6 Newsletter

  • Post author:Linda Burke
  • Post published:February 2, 2023
  • Post category:Featured
  • Post comments:0 Comments

We’re pleased to announce that our latest edition of The aHUS Global Advocate newsletter has been released (Vol 6, Jan 2023)…

Continue ReadingThe aHUS Global Advocate: Our Vol 6 Newsletter
Read more about the article What’s New in aHUS Research? Jan 2023 Edition

What’s New in aHUS Research? Jan 2023 Edition

  • Post author:Linda Burke
  • Post published:January 30, 2023
  • Post category:Featured
  • Post comments:0 Comments

Sometimes there are fascinating articles related to atypical HUS which people might miss, and it’s then that it’s particularly helpful to…

Continue ReadingWhat’s New in aHUS Research? Jan 2023 Edition
Read more about the article aHUS Global Action – Meet Trustee K Grey

aHUS Global Action – Meet Trustee K Grey

  • Post author:Linda Burke
  • Post published:January 28, 2023
  • Post category:Featured
  • Post comments:1 Comment

As advocates for the rare disease atypical haemolytic uraemic syndrome (atypical HUS), there’s only one group of patients and caregivers whose…

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Read more about the article aHUS what is really happening?

aHUS what is really happening?

  • Post author:Len Woodward
  • Post published:January 21, 2023
  • Post category:Featured/News
  • Post comments:0 Comments

Listening to some aHUS people on social media there is a sense that all are not satisfied with what is happening…

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Read more about the article Rare Disease Day 2023- aHUS Community Project

Rare Disease Day 2023- aHUS Community Project

  • Post author:Linda Burke
  • Post published:January 8, 2023
  • Post category:Featured
  • Post comments:0 Comments

On February 28, 2023, the world will join together to raise awareness for rare diseases like atypical HUS. Recognized annually on…

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A ChatGPT about aHUS (and that Christmas question)

  • Post author:Len Woodward
  • Post published:December 22, 2022
  • Post category:Featured
  • Post comments:0 Comments

aHUS: Rare Blood Disorder This is a chat Global Action had with ChatGPT about aHUS. ChatGPT is a very new online…

Continue ReadingA ChatGPT about aHUS (and that Christmas question)
Read more about the article HST TMA Is It aHUS ?

HST TMA Is It aHUS ?

  • Post author:Len Woodward
  • Post published:December 14, 2022
  • Post category:Featured
  • Post comments:0 Comments

- An Hematopoietic Stem Cell Transplant (HSCT) is a way to treat some malignant and benign diseases. The transplant replaces disease…

Continue ReadingHST TMA Is It aHUS ?
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