Rare but Real: How Common is Atypical HUS?
How rare is ‘aHUS Rare’? If you or a loved one has been diagnosed with atypical HUS, it’s likely the medical…
An ill person happens to “walk” into a Hospital and is having an onset of aHUS…
For a person experiencing aHUS (atypical hemolytic uremic syndrome / C-TMA/cTMA) onset who arrives at a hospital, acute stabilization (often with…
Managing Anti-Complement factor H Auto Antibodies version of aHUS
aHUS patients are well aware of Anti-Complement Factor H Auto Antibodies can cause aHUS. I have heard them called Anti factor…
Serious Infections- aHUS patients are their own early warning system
An article appeared last month about practical things that need to be done to limit the risk for complement inhibitor users,…
A month of ravulizumab use adverse events
The Food and Drugs Administration has a database of adverse events (AEs) reported for all the drugs in use. It is…
Plain language summary of an aHUS Clinical Trial
This is a plain language summary of the final article to be published about Stopping Eculizumab Treatment Safely Clinical Trial. The…
Since You Asked: aHUS NOMENCLATURE
The topic of ‘changing the name of aHUS’ crops up regularly, so since people keep asking here are details which might…
Rare Disease Day 2026: Many Voices, One Global Movement
Rare Disease Day 2026: Many Voices, One Global Movement Since 2015, the aHUS Alliance Global Action team has been right there…
The rapid development of aHUS knowledge and its treatment in China
Until eight years ago China had no policy on the care of people with rare diseases. There were discussions about it…
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