A key issue why a name change will impact – Taylor and Len chat
Taylor Coffman and Len Woodward are two public aHUS patient advocates who write about aHUS and the patient experience of living…
New aHUS name it is like squaring the circle
Hey what's new? I have found out something new , did you know that aHUS is not the official name for…
Would experts compromise on a new name for aHUS (1)
Is there room at this stage for some compromise on a new name for aHUS? Would something like cTMA-HUS or even…
aHUS a Physician Patient Partnership or Not
Not many people will have heard of Donal O'Donoghue, He was a nephrologist from the North of England. He was a…
What’s New in aHUS Research: August 2026 Edition
Once more the aHUS Alliance Global Action team presents a brief overview of new publications just added to our ‘Atypical HUS…
DGKE is NOT a cTMA , DGKE is its own COMMUNITY
As any DGKE patient old enough or any family members know it is simply that : p.Trp322* (c966 D>A) is one…
Primary and Secondary aHUS? Does it really matter?
The question should be why do some triggers kick off a complement only TMA ( Primary aHUS ) and yet can…
aHUS Global Advocate Newsletter: Aug 2026 Edition
We’re pleased to announce that our latest edition of The aHUS Global Advocate newsletter has been released (Vol 14, August 2026)…
aHUS may not always happen without 3 hits
Although it is thought it might, aHUS does not always happen. It needs 3 hits. It is known that aHUS is…
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