Variants of uncertain significance (VUS) for aHUS
If or when aHUS patients or their families are tested for complement genetic variants which could be the cause of their…
If or when aHUS patients or their families are tested for complement genetic variants which could be the cause of their…
Atypical HUS - research updates for Feb 2024
Have you ever seen or read the medication guidance for using Eculizumab, or even Ravulizumab? There is one in every vial…
When this review of the aHUS patients research agenda began, the question was asked "is a patient research agenda worth while?".…
During December and January last, there has been a review of each of the 15 topics in the patients research agenda.…
Pregnancy is a common trigger of aHUS, this can impact on someone who is predisposed or related to someone predisposed to…
An illness like aHUS can have an impact on a normal active life during the acute stage of the illness and…
Mental health is an extensive issue of modern times focusing on depression and anxieties. The inverse of depression is self-esteem how…
Although people’s experiences differ both treatment and long term effects of aHUS can be detected by patients. Patients have asked :…