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Read more about the article aHUS Nomenclature: Bridges to the Future

aHUS Nomenclature: Bridges to the Future

  • Post author:Linda Burke
  • Post published:April 3, 2025
  • Post category:Featured
  • Post comments:0 Comments

Scientific advancements in the last decade have yielded promising avenues on multiple fronts, including those related to atypical HUS and other…

Continue ReadingaHUS Nomenclature: Bridges to the Future
Read more about the article TMAs -How many are there?

TMAs -How many are there?

  • Post author:Len Woodward
  • Post published:March 30, 2025
  • Post category:Featured
  • Post comments:0 Comments

The Primary aHUS community now understands that there is no accurate record of how many "aHUS" patients there are , but…

Continue ReadingTMAs -How many are there?
Read more about the article Patients from around the world discuss aHUS name change

Patients from around the world discuss aHUS name change

  • Post author:Len Woodward
  • Post published:March 20, 2025
  • Post category:Featured
  • Post comments:0 Comments

aHUS patients have been deliberately not engaged in the proposal to change the name aHUS into a plethora of thrombotic microangiopathy…

Continue ReadingPatients from around the world discuss aHUS name change
Read more about the article A chat about the Ravu-Pregnancy Registry

A chat about the Ravu-Pregnancy Registry

  • Post author:Len Woodward
  • Post published:March 19, 2025
  • Post category:Featured
  • Post comments:0 Comments

Recently I wrote an article about a clinical study which is an Ravulizumab pregnancy registry in the USA. Then tried to…

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Read more about the article aHUS pioneers – Named it, Explained it, Treated it,

aHUS pioneers – Named it, Explained it, Treated it,

  • Post author:Len Woodward
  • Post published:March 17, 2025
  • Post category:Featured
  • Post comments:0 Comments

What follows is an imagined "dinner party conversation" about atypical hemolytic uremic syndrome (aHUS) among aHUS pioneers—Professor Conrad von Gasser, Professor…

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Read more about the article Balancing the Family Table: Challenges of Serving Up Kidney-Friendly Recipes

Balancing the Family Table: Challenges of Serving Up Kidney-Friendly Recipes

  • Post author:Linda Burke
  • Post published:March 12, 2025
  • Post category:Featured
  • Post comments:0 Comments

The Struggle of Meal Planning in Families with a Kidney Patient When a family member has a rare kidney disease, meal…

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Read more about the article People have always had Primary aHUS?

People have always had Primary aHUS?

  • Post author:Len Woodward
  • Post published:March 9, 2025
  • Post category:Featured
  • Post comments:0 Comments

The disease now called Primary aHUS has existed as long as humans had complement and coagulation systems. Dinosaurs might have had…

Continue ReadingPeople have always had Primary aHUS?
Read more about the article Familial Impact – RDD 25 video insights

Familial Impact – RDD 25 video insights

  • Post author:Len Woodward
  • Post published:March 6, 2025
  • Post category:Featured
  • Post comments:0 Comments

The second part about the insights arising from the RDD25 aHUS video is about the rare disease familial impact. (Note: Part…

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Read more about the article aHUS Patient Numbers :RDD 25 Video Insights

aHUS Patient Numbers :RDD 25 Video Insights

  • Post author:Len Woodward
  • Post published:March 6, 2025
  • Post category:Featured
  • Post comments:0 Comments

Remember in the COVID years of 2020 and 2021 the media was plastered with COVID patient numbers. They were ubiquitous and…

Continue ReadingaHUS Patient Numbers :RDD 25 Video Insights
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