Discriminatory rare disease reach on social media platforms
Is social media reach to aHUS patients and families hindered because of our disease’s rareness? Rare disease patients are so few…
Is social media reach to aHUS patients and families hindered because of our disease’s rareness? Rare disease patients are so few…
Raising aHUS awareness is built into the DNA of the aHUS alliance and has been from its outset and also for…
2025 – SEPT – 2026 Atypical HUS: Fact Sheet Atypical Hemolytic Uremic Syndrome – a Rare Disease Information and medical…
Hiding in plain sight were neighbours Republic of Ireland and Iceland. The south of Ireland is well known as the place…
It is said that thrombomodulin, or TM (AKA THBD) ,or CD141, plays only an indirect part in TMA (thrombotic microangiopathy) .…
The drug Epysqli or the version of eculizumab known as eculizumab-aagh has been available in some countries since 2024 . Although…
A second article in a series of four planned has just been published. It is about the health economics of treatment…
So aHUS is an autoimmune disease? Well actually not but depending on the definition of aHUS there can be an autoimmune…
2025 aHUS Awareness Day Project - Watch it at this Link https://bit.ly/2025aHUS24Sept aHUS AWARENESS DAY 24 September – an annual day…