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Read more about the article Discriminatory rare disease reach on social media platforms

Discriminatory rare disease reach on social media platforms

  • Post author:Len Woodward
  • Post published:September 19, 2025
  • Post category:Featured
  • Post comments:0 Comments

Is social media reach to aHUS patients and families hindered because of our disease’s rareness? Rare disease patients are so few…

Continue ReadingDiscriminatory rare disease reach on social media platforms
Read more about the article Raising Global aHUS Awareness Everywhere

Raising Global aHUS Awareness Everywhere

  • Post author:Len Woodward
  • Post published:September 16, 2025
  • Post category:News
  • Post comments:0 Comments

Raising aHUS awareness is built into the DNA of the aHUS alliance and has been from its outset and also for…

Continue ReadingRaising Global aHUS Awareness Everywhere
Read more about the article Atypical HUS Facts:  2025 -Sept- 2026

Atypical HUS Facts: 2025 -Sept- 2026

  • Post author:Linda Burke
  • Post published:September 12, 2025
  • Post category:Uncategorized
  • Post comments:0 Comments

2025 – SEPT – 2026  Atypical HUS: Fact Sheet Atypical Hemolytic Uremic Syndrome – a Rare Disease   Information and medical…

Continue ReadingAtypical HUS Facts: 2025 -Sept- 2026
Read more about the article More countries becoming neighbours in Global aHUS Town

More countries becoming neighbours in Global aHUS Town

  • Post author:Len Woodward
  • Post published:September 11, 2025
  • Post category:Featured
  • Post comments:0 Comments

Hiding in plain sight were neighbours Republic of Ireland and Iceland. The south of Ireland is well known as the place…

Continue ReadingMore countries becoming neighbours in Global aHUS Town
Read more about the article Thrombomodulin and TMA- complement inhibition or not?

Thrombomodulin and TMA- complement inhibition or not?

  • Post author:Len Woodward
  • Post published:September 7, 2025
  • Post category:Featured/News
  • Post comments:0 Comments

It is said that thrombomodulin, or TM (AKA THBD) ,or CD141, plays only an indirect part in TMA (thrombotic microangiopathy) .…

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Read more about the article More is known about Epysqli these days

More is known about Epysqli these days

  • Post author:Len Woodward
  • Post published:September 4, 2025
  • Post category:Featured
  • Post comments:0 Comments

The drug Epysqli or the version of eculizumab known as eculizumab-aagh has been available in some countries since 2024 . Although…

Continue ReadingMore is known about Epysqli these days
Read more about the article Health economics and stopping eculizumab treatment safely

Health economics and stopping eculizumab treatment safely

  • Post author:Len Woodward
  • Post published:August 30, 2025
  • Post category:News
  • Post comments:0 Comments

A second article in a series of four planned has just been published. It is about the health economics of treatment…

Continue ReadingHealth economics and stopping eculizumab treatment safely
Read more about the article aHUS is an autoimmune disease?

aHUS is an autoimmune disease?

  • Post author:Len Woodward
  • Post published:August 29, 2025
  • Post category:Featured
  • Post comments:0 Comments

So aHUS is an autoimmune disease? Well actually not but depending on the definition of aHUS there can be an autoimmune…

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Read more about the article aHUS Awareness Day

aHUS Awareness Day

  • Post author:Linda Burke
  • Post published:August 27, 2025
  • Post category:Featured
  • Post comments:0 Comments

2025 aHUS Awareness Day Project - Watch it at this Link https://bit.ly/2025aHUS24Sept aHUS AWARENESS DAY 24 September – an annual day…

Continue ReadingaHUS Awareness Day
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