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Read more about the article What about aHUS and COVID Vaccinations and access to genetic testing and genetic research

What about aHUS and COVID Vaccinations and access to genetic testing and genetic research

  • Post author:Len Woodward
  • Post published:April 28, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

There was one question about COVID vaccinations and aHUS in the RDD2022 Video, Global Action featured several articles about COVID vaccination…

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Read more about the article RD Day 2022: aHUS Webinar hosted by AKF

RD Day 2022: aHUS Webinar hosted by AKF

  • Post author:Linda Burke
  • Post published:February 12, 2022
  • Post category:Uncategorized
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In honor of this year's Rare Disease Day on February 28, the American Kidney Fund (AKF) will be hosting “Rare Disease…

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Read more about the article SHU atypique: RARE à l’écoute Podcasts

SHU atypique: RARE à l’écoute Podcasts

  • Post author:ahusalliance
  • Post published:January 23, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

 Si vous désirez vous informer et aller plus loin dans la connaissance de cette maladie rare, nous vous invitons à lire…

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Read more about the article aHUS Trial Watch 15 (Iptacopan)

aHUS Trial Watch 15 (Iptacopan)

  • Post author:Len Woodward
  • Post published:January 19, 2022
  • Post category:Uncategorized
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Iptacopan is a complement inhibitor that it is taken orally, twice daily. It works by inhibiting Complement Factor B (CFB ).…

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Read more about the article aHUS Project for 2022 Rare Disease Day

aHUS Project for 2022 Rare Disease Day

  • Post author:ahusalliance
  • Post published:December 29, 2021
  • Post category:Uncategorized
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Rare Disease Day 2022: aHUS Alliance Global Action to mark the day with a patient-centered video that focuses on questions posed by those affected by the rare disease atypical HUS.

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Read more about the article It’s Time to re-Define aHUS Patient Engagement

It’s Time to re-Define aHUS Patient Engagement

  • Post author:Linda Burke
  • Post published:December 13, 2021
  • Post category:Uncategorized
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Reaching out to Bridge Current Gaps As complement research has progressed and more is understood about thrombotic microangiopathy, it’s interesting that…

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Read more about the article Atypical HUS CAREGIVERS

Atypical HUS CAREGIVERS

  • Post author:Linda Burke
  • Post published:November 13, 2021
  • Post category:Uncategorized
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Atypical HUS families emphasize and embody the ‘care’ portion of the word ‘caregiver’. Many of those caring for someone with atypical…

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Read more about the article TMA: the Need for a Multidisciplinary Team Approach

TMA: the Need for a Multidisciplinary Team Approach

  • Post author:Linda Burke
  • Post published:November 5, 2021
  • Post category:Uncategorized
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Can MedEd Encourage Specialists to Form TMA Teams? Tiny clots which form in the body’s small blood vessels - in brief,…

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Read more about the article aHUS Diagnosis Process-First Report

aHUS Diagnosis Process-First Report

  • Post author:Len Woodward
  • Post published:September 24, 2021
  • Post category:Uncategorized
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The first report on what 227 aHUS patients from around the world told us about their aHUS diagnosis experience and their…

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