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Read more about the article SHUa ao redor do mundo: Brasil

SHUa ao redor do mundo: Brasil

  • Post author:Linda Burke
  • Post published:July 29, 2023
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

Temos o prazer de oferecer mais uma em nossa série de “SHUa ao redor do mundo”, onde apresentamos as notícias e…

Continue ReadingSHUa ao redor do mundo: Brasil
Read more about the article Why aHUS for them not me?

Why aHUS for them not me?

  • Post author:Len Woodward
  • Post published:June 6, 2023
  • Post category:Uncategorized
  • Post comments:0 Comments

Hey GA tell me why aHUS for them and not me? Oh hi again. Who is them?Some of my family they…

Continue ReadingWhy aHUS for them not me?
Read more about the article Lessons about aHUS  Patient Advocacy

Lessons about aHUS Patient Advocacy

  • Post author:Len Woodward
  • Post published:May 18, 2023
  • Post category:Uncategorized
  • Post comments:0 Comments

In the past this website featured a series of blogs which covered the story of a patient advocacy organisation in the…

Continue ReadingLessons about aHUS Patient Advocacy
Read more about the article aHUS meningococcal infection – vigilance essential

aHUS meningococcal infection – vigilance essential

  • Post author:Len Woodward
  • Post published:March 23, 2023
  • Post category:Uncategorized
  • Post comments:0 Comments

All aHUS patients know that when on complement inhibitor treatment they are at risk of meningococcal infection. Do they? Of course,…

Continue ReadingaHUS meningococcal infection – vigilance essential
Read more about the article Study of the aHUS Diagnosis Process- the “whys”, “whats” and “hows”

Study of the aHUS Diagnosis Process- the “whys”, “whats” and “hows”

  • Post author:Len Woodward
  • Post published:December 8, 2022
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

It is now over two years ago that Global Action began a major study of the aHUS Diagnosis Process, it is…

Continue ReadingStudy of the aHUS Diagnosis Process- the “whys”, “whats” and “hows”
Read more about the article aHUS adverse events reporting

aHUS adverse events reporting

  • Post author:Len Woodward
  • Post published:November 29, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

So adverse events are being reported. In USA over 4500 per year on average for eculizumab are reported to the FDA…

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Read more about the article aHUS adverse events and patient reported outcomes

aHUS adverse events and patient reported outcomes

  • Post author:Len Woodward
  • Post published:November 29, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

aHUS patients in clinical trials are monitored for adverse events and personal outcomes experience while on treatment. Adverse events have been…

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Read more about the article Kamal is an aHUS Super Hero

Kamal is an aHUS Super Hero

  • Post author:Len Woodward
  • Post published:November 27, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

Kamal Shah is a Director/Trustee of aHUS alliance Global Action. He first had aHUS over 25 years ago. It was triggered…

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Read more about the article Recruiting to aHUS Trials is not easy

Recruiting to aHUS Trials is not easy

  • Post author:Len Woodward
  • Post published:November 21, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

Hey Global aHUS alliance. Hi, but its aHUS alliance Global Action actually Whatever, let's settle on GA. Well we have been…

Continue ReadingRecruiting to aHUS Trials is not easy
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