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Read more about the article 2021 FAQs – FACTS about Atypical HUS

2021 FAQs – FACTS about Atypical HUS

  • Post author:Linda Burke
  • Post published:September 19, 2021
  • Post category:Uncategorized
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aHUS Awareness Day 2021 - Answers to FAQs Finding information about any rare disease is challenging, and perhaps more so for…

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Read more about the article The light and dark world of aHUS

The light and dark world of aHUS

  • Post author:ahusalliance
  • Post published:August 25, 2021
  • Post category:Uncategorized
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Article No. 453 25 August 2021 Recently Astra Zeneca concluded its purchase of the  rare disease business unit, Alexion. $39 billion…

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Read more about the article A harrowing aHUS tale

A harrowing aHUS tale

  • Post author:ahusalliance
  • Post published:July 28, 2021
  • Post category:Uncategorized
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Article No. 449 28 July 2021 It is five years on since the article below  about a little girl in India…

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Read more about the article What became of the aHUS 130?

What became of the aHUS 130?

  • Post author:ahusalliance
  • Post published:July 14, 2021
  • Post category:Uncategorized
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Article No. 446 14 July 2021 Eculizumab effectiveness and safety in the treatment of aHUS was established in five clinical trials…

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Read more about the article Questioning seldom heard aHUS answers

Questioning seldom heard aHUS answers

  • Post author:ahusalliance
  • Post published:June 11, 2021
  • Post category:Uncategorized
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Article No. 440 11 June 2021 Sometimes aHUS alliances Global Action sees things written about aHUS on the internet which are …

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Read more about the article aHUS webinar by Marina Noris

aHUS webinar by Marina Noris

  • Post author:ahusalliance
  • Post published:June 6, 2021
  • Post category:Uncategorized
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Article No. 438 6 June 2021   Marina ( left ) with some of the team in Bergamo   Another ERKNet…

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Read more about the article A pillar of aHUS hope

A pillar of aHUS hope

  • Post author:ahusalliance
  • Post published:June 1, 2021
  • Post category:Uncategorized
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Article No. 438 1 June 2021 One of six pillars of hope for those with a rare disease, is having a…

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Read more about the article When good Complement  goes aHUS bad

When good Complement goes aHUS bad

  • Post author:ahusalliance
  • Post published:May 2, 2021
  • Post category:Uncategorized
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Article   430 2 May 2021 OK so HUS is caused by e.coli and aHUS results from Complement dysregulation. Both are…

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Read more about the article Direct action – aHUS research

Direct action – aHUS research

  • Post author:ahusalliance
  • Post published:April 23, 2021
  • Post category:Uncategorized
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Article No.  429 23 April 2021 The aHUS alliance reputation for its 360 degree view of the rare disease aHUS continues…

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