A pillar of aHUS hope
Article No. 438 1 June 2021 One of six pillars of hope for those with a rare disease, is having a…
When good Complement goes aHUS bad
Article 430 2 May 2021 OK so HUS is caused by e.coli and aHUS results from Complement dysregulation. Both are…
Direct action – aHUS research
Article No. 429 23 April 2021 The aHUS alliance reputation for its 360 degree view of the rare disease aHUS continues…
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Rare disease patients becoming rarer in the USA.
Article No. 427 15 April 2021 It is not surprising that people are confused by rare disease definitions and terms, the…
aHUS and COVID 19 Vaccine Update Update
Article No. 424 19 March 2021 COVID 19 vaccine supplies are being hampered around the world because of uncertainty about a…
Evidence helps aHUS eculizumab access
Article No 416 2 February 2021 Vergoeding eculizumab verlengd tot eind 2025 In March 2016 the Appraisal Committee (ACP) of the…
aHUS Trials Watch 11 ( Crovalimab)
Article No. 415 1 February 2021 In a recent article (article413) about research into why specifically monoclonal antibodies (mAb) work when…
Follow up on aHUS/COVID19 JAbs Follow Up
Article No. 414 28 January 2021 A further update on the issue of aHUS and COVID 19 vaccinations from the author’s…
BB5.1 aHUS connection to c.3643C>G; p. Arg1215Gly
Article No 413 23 January 2021 Very few people have heard of BB5.1 nor even c.3643C>G; p. Arg1215Gly. Yet both are of…