Skip to content
aHUS Alliance Action
  • Home
  • About aHUS Alliance
  • Articles
  • Info Centre
  • Patient Associations
  • Clinicians
  • Contact Us
  • Donate
Search this website
Menu Close
  • Home
  • About aHUS Alliance
  • Articles
  • Info Centre
  • Patient Associations
  • Clinicians
  • Contact Us
  • Donate

Uncategorized

Home » Uncategorized » Page 3
Read more about the article aHUS Trial Watch 15 (Iptacopan)

aHUS Trial Watch 15 (Iptacopan)

  • Post author:Len Woodward
  • Post published:January 19, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

Iptacopan is a complement inhibitor that it is taken orally, twice daily. It works by inhibiting Complement Factor B (CFB ).…

Continue ReadingaHUS Trial Watch 15 (Iptacopan)
Read more about the article aHUS Project for 2022 Rare Disease Day

aHUS Project for 2022 Rare Disease Day

  • Post author:ahusalliance
  • Post published:December 29, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

Rare Disease Day 2022: aHUS Alliance Global Action to mark the day with a patient-centered video that focuses on questions posed by those affected by the rare disease atypical HUS.

Continue ReadingaHUS Project for 2022 Rare Disease Day
Read more about the article It’s Time to re-Define aHUS Patient Engagement

It’s Time to re-Define aHUS Patient Engagement

  • Post author:Linda Burke
  • Post published:December 13, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

Reaching out to Bridge Current Gaps As complement research has progressed and more is understood about thrombotic microangiopathy, it’s interesting that…

Continue ReadingIt’s Time to re-Define aHUS Patient Engagement
Read more about the article Atypical HUS CAREGIVERS

Atypical HUS CAREGIVERS

  • Post author:Linda Burke
  • Post published:November 13, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

Atypical HUS families emphasize and embody the ‘care’ portion of the word ‘caregiver’. Many of those caring for someone with atypical…

Continue ReadingAtypical HUS CAREGIVERS
Read more about the article TMA: the Need for a Multidisciplinary Team Approach

TMA: the Need for a Multidisciplinary Team Approach

  • Post author:Linda Burke
  • Post published:November 5, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

Can MedEd Encourage Specialists to Form TMA Teams? Tiny clots which form in the body’s small blood vessels - in brief,…

Continue ReadingTMA: the Need for a Multidisciplinary Team Approach
Read more about the article aHUS Diagnosis Process-First Report

aHUS Diagnosis Process-First Report

  • Post author:Len Woodward
  • Post published:September 24, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

The first report on what 227 aHUS patients from around the world told us about their aHUS diagnosis experience and their…

Continue ReadingaHUS Diagnosis Process-First Report

Tweet challenge for aHUS awareness

  • Post author:Len Woodward
  • Post published:September 22, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

Research has shown that around 2 million tweets are made on Twitter each day. They are shared by around 600 thousand…

Continue ReadingTweet challenge for aHUS awareness
Read more about the article 2021 FAQs – FACTS about Atypical HUS

2021 FAQs – FACTS about Atypical HUS

  • Post author:Linda Burke
  • Post published:September 19, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

aHUS Awareness Day 2021 - Answers to FAQs Finding information about any rare disease is challenging, and perhaps more so for…

Continue Reading2021 FAQs – FACTS about Atypical HUS
Read more about the article The light and dark world of aHUS

The light and dark world of aHUS

  • Post author:ahusalliance
  • Post published:August 25, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No. 453 25 August 2021 Recently Astra Zeneca concluded its purchase of the  rare disease business unit, Alexion. $39 billion…

Continue ReadingThe light and dark world of aHUS
  • Go to the previous page
  • 1
  • 2
  • 3
  • 4
  • 5
  • 6
  • …
  • 22
  • Go to the next page

Quick Links

  • Home
  • About aHuS Alliance
  • Articles
  • Info Center
  • Patient Associations
  • Clinicians
  • Contact Us
  • Donate

Subscribe to our Newsletter

Get all the latest news from the aHUS world. For more information:

Email is required Email is not valid
Thanks for your subscription.
Failed to subscribe, please contact admin.

aHUS Keep Connected

Connect with us

Facebook-f Twitter Instagram Linkedin Envelope
Copyright 2023 - © aHUS alliance