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A Global AHUS Patient Organisation Connecting, Informing And Collaborating To Provide Awareness, Help, Understanding And Support For AHUS Patient Advocacy Everywhere.
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WARNING: Serious meningococcal infection can happen in patients treated with complement inhibitors. Follow precautions and be vigilant. Keep up to date with vaccines and boosters. Be vigilant and act quickly on possible symptoms.
aHUS Awareness Day & Rare Disease Day
Articles: News & Views
7 days or less is a rapid aHUS diagnosis
A rapid diagnosis of aHUS in 7 days or less usually results in the patient…
Eculizumab biosimilars available in Europe and USA
There are now licensed biosimilars to eculizumab available in Europe and also in the USA…
Choice of aHUS treatments
In making a choice aHUS patients’ preferences among treatments like eculizumab (and its biosimulars) ,…
Our Mission
Statement
The aHUS alliance, through the collaboration of its affiliates will promote global awareness of aHUS, will work with international aHUS researchers and, by supporting newly emerging national aHUS patient groups, will bring relief and support to those affected by aHUS to save, and improve the quality of, more lives.
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It's not how much we give but how much love we put into giving
- Mother Theresa
Support aHUS Alliance Action
You can support this trust of only volunteers in our quest to support aHUS patients and their family worldwide by making a donation through Paypal
Testimonial
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Isabella
Financial Adviser
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Alexander
Health Activist
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Olivia
Teacher