Child’s ravulizumab adverse event no one cares
Hey I have a daughter with aHUS treated with ravulizumab and every week before her next infusion her behaviour changes and…
Have you voted yet?
Do you want the name aHUS to go? Because they are going to change it. Do you want to have your…
Knowledge of aHUS – a Mountain to Climb
When it comes to knowledge of rare diseases patients are frequently critical of the level of knowledge of their treating clinicians.…
A CALL for aHUS/cTMA community support for an aHUS Day event.
Renaming aHUS – What’s Your Vote? Watch the project video & share its link: https://bit.ly/aHUSday2026video The 2026 aHUS Awareness Day project…
More countries for Global aHUS Town
Since our last report on Global aHUS Town very little has changed in the number of countries who are now aHUS…
Helping another TMA’s Initiative- CAPS
CAPS or Catastrophic Antiphospholipid Syndrome is an autoimmune and kidney disease which shares the same experience of thrombotic microangiopathy with aHUS/…
The 2024 Global aHUS Poll Progress
When conceived it was known from previous experiences that having a global poll about aHUS was going to be a major…
Meningitis outbreak and living with aHUS
A meningitis outbreak should be of particular concern to those living with aHUS. A recent outbreak in the UK was described…
Raising Global aHUS Awareness Everywhere
Raising aHUS awareness is built into the DNA of the aHUS alliance and has been from its outset and also for…
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