A call for interest in joining the aHUS CAB
This time last year a couple of dozen people with an interest in global aHUS advocacy were discussing and deciding on…
aHUS is confusing
Sometimes it can be confusing being an aHUS patient. Even to knowing whether you are really an aHUS patient. Even if…
aHUS what is really happening?
Listening to some aHUS people on social media there is a sense that all are not satisfied with what is happening…
*Cancelled* Global aHUS “Town Hall” Meetings – Awareness Day 2022
Breaking news Breaking News Breaking News Due to unforeseen events the planned Town Hall meetings on aHUS awareness are cancelled. Sorry…
TMAs and aHUS illustrated
Here is a most unusual clinical article from earlier this year. In Thrombotic microangiopathies : An Illustrated review the Abou-Ismail Group…
KDIGO – aHUS controversies and consensus
Six years ago, aHUS featured, along with another renal disease MPGN/C3G, in a controversies conference held by KDIGO (Kidney Disease Improving…
Trial watch 16 -Factor D complement inhibitor.
One of the ways to find out which drugs have a potential for aHUS treatment is to look at trials for…
aHUS Trial Watch 15 ( Iptacopan) update
Global Action featured a new trial for an aHUS treatment iptacopan earlier this year ( CLICK ON IMAGE BELOW) aHUS Trial…
aHUS Day 2022: Awareness Through Togetherness
The 8th international aHUS Awareness Day will occur on 24 September 2022, with this year’s theme as ‘Awareness through Togetherness’. We’re…