Strokes, DGKE , Sports & Recreation and aHUS questions
Three questions in the RDD22 video are each very specific but reflect the diverse impact of having had aHUS. Firstly one…
Hormones and aHUS
Questions about hormones and aHUS in the RDD2022 video. It is a feature of aHUS that it becomes more common in…
aHUS remission chance and relapse risk
Remission from aHUS is different from having been cured because there is still an uncertainty that aHUS can return. If that…
Rare Disease Day 2022 aHUS Questions
When Jeff, the producer of these awareness day videos, suggested that "questions" should be the theme of this years' RDD Video…
COVID TRIGGERS aHUS
It was March 2020 and COVID appears on www.ahusallianceaction.org for first time with a question: Can the coronavirus trigger an infection…
YOU’VE GOT aHUS!
The third article in the series about the aHUS Diagnosis Process is published today. Rare Disease Day 2022 The article covers…
LONG aHUS
aHUS alliance Global Action has previously brought up the concept of "Long aHUS " in its articles during the COVID pandemic.…
Advocacy punching above its aHUS weight
There is so much chat these days about what things should be like after the pandemic. Though it does seem at…
TÜRKİYE’DE Kİ; aHÜS H; ASTALIĞINA GENEL BİR BAKIŞ!
Atipik Hemolitik Üremik Sendrom kısaca aHÜS, vücudumuzun bağışıklık sisteminin ana elemanlarından olan ana savunma sisteminin de ki bir parçanın regülasyon bozukluğu…