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Home » News » Page 4

One genetic problem but two diseases

  • Post author:Len Woodward
  • Post published:November 18, 2021
  • Post category:News
  • Post comments:0 Comments

Take "diacylglycerol kinase " and add a "syndrome" throw in a letter from the Greek alphabet " ε" and you have…

Continue ReadingOne genetic problem but two diseases
Read more about the article Atypical HUS Research: What’s New OCT 2021

Atypical HUS Research: What’s New OCT 2021

  • Post author:ahusalliance
  • Post published:October 28, 2021
  • Post category:News
  • Post comments:0 Comments

We marked aHUS Awareness Day (24 Sept) with our own advocacy-based research, releasing the 1st report of data and insights from…

Continue ReadingAtypical HUS Research: What’s New OCT 2021
Read more about the article Ravulizumab -Superwoman juice?

Ravulizumab -Superwoman juice?

  • Post author:Len Woodward
  • Post published:October 18, 2021
  • Post category:News
  • Post comments:0 Comments

The portrayal of rare diseases in the media can be both positive and detrimental. It can be sensational and political. It…

Continue ReadingRavulizumab -Superwoman juice?
Read more about the article Bergamo aHUS symposium gets the go ahead

Bergamo aHUS symposium gets the go ahead

  • Post author:Len Woodward
  • Post published:October 12, 2021
  • Post category:News
  • Post comments:0 Comments

In the weeks leading up to aHUS awareness day an announcement was made which did not get the attention it perhaps…

Continue ReadingBergamo aHUS symposium gets the go ahead
Read more about the article Ecu to ravu transfer UPDATE

Ecu to ravu transfer UPDATE

  • Post author:Len Woodward
  • Post published:October 6, 2021
  • Post category:News
  • Post comments:0 Comments

Update news on switching process. aHUS alliance Global Action were not aware of a prior step in the switching process to…

Continue ReadingEcu to ravu transfer UPDATE
Read more about the article USA aHUS – treatment costs study

USA aHUS – treatment costs study

  • Post author:Len Woodward
  • Post published:October 4, 2021
  • Post category:News
  • Post comments:0 Comments

Access to treatment for aHUS is a global issue. Many patients find themselves in countries where their health providers will not…

Continue ReadingUSA aHUS – treatment costs study
Read more about the article Pregnancy and aHUS

Pregnancy and aHUS

  • Post author:Len Woodward
  • Post published:October 1, 2021
  • Post category:News
  • Post comments:0 Comments

The topic of pregnancy and aHUS is included in the Global aHUS Patients’ Research Agenda. It has featured in articles on…

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Read more about the article aHUS Patient Registries Iran & ERKNet

aHUS Patient Registries Iran & ERKNet

  • Post author:Len Woodward
  • Post published:September 29, 2021
  • Post category:News
  • Post comments:0 Comments

There have been several articles about aHUS Patient Registries on this website over the years. Patient Registries are an important part…

Continue ReadingaHUS Patient Registries Iran & ERKNet
Read more about the article Anti-FHs aHUS – a Disease within a Disease

Anti-FHs aHUS – a Disease within a Disease

  • Post author:ahusalliance
  • Post published:May 14, 2019
  • Post category:News
  • Post comments:0 Comments

The aHUS Patient community is becoming familiar with the fact that an incident of aHUS is a chance  event which requires…

Continue ReadingAnti-FHs aHUS – a Disease within a Disease
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