Nephmadness and aHUS
In March each year the nephrology community, supported by the American Journal of Kidney Disease, engages in an educational initiative called…
In March each year the nephrology community, supported by the American Journal of Kidney Disease, engages in an educational initiative called…
Zoom has helped with keeping aHUS advocacy going during the restrictions resulting from the COVID pandemic. Starting a zoom meeting always…
I know it should not matter so much but whenever I see incidence and prevalence figures for aHUS in articles etc,…
Two updates on the Global aHUS Community Advisory Board. There is some information about the inaugural set of CAB / PHARMA…
Another trial of a complement inhibitor for aHUS treatment has been announced , it is for something currently called NM8074. Full…
This time last year a couple of dozen people with an interest in global aHUS advocacy were discussing and deciding on…
Sometimes it can be confusing being an aHUS patient. Even to knowing whether you are really an aHUS patient. Even if…
Listening to some aHUS people on social media there is a sense that all are not satisfied with what is happening…
Breaking news Breaking News Breaking News Due to unforeseen events the planned Town Hall meetings on aHUS awareness are cancelled. Sorry…