COVID and aHUS at the end of 2021
As the year ends we are still living with COVID. It seems like it is never ending. And it is and…
As the year ends we are still living with COVID. It seems like it is never ending. And it is and…
A trial has been designed by Alexion to examine the efficacy of Ravulizumab to treat those with a Thrombotic Microngiopathy ,…
Take "diacylglycerol kinase " and add a "syndrome" throw in a letter from the Greek alphabet " ε" and you have…
We marked aHUS Awareness Day (24 Sept) with our own advocacy-based research, releasing the 1st report of data and insights from…
The portrayal of rare diseases in the media can be both positive and detrimental. It can be sensational and political. It…
In the weeks leading up to aHUS awareness day an announcement was made which did not get the attention it perhaps…
Update news on switching process. aHUS alliance Global Action were not aware of a prior step in the switching process to…
Access to treatment for aHUS is a global issue. Many patients find themselves in countries where their health providers will not…
The topic of pregnancy and aHUS is included in the Global aHUS Patients’ Research Agenda. It has featured in articles on…