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Read more about the article YOU’VE GOT aHUS!

YOU’VE GOT aHUS!

  • Post author:Len Woodward
  • Post published:February 28, 2022
  • Post category:News
  • Post comments:0 Comments

The third article in the series about the aHUS Diagnosis Process is published today. Rare Disease Day 2022 The article covers…

Continue ReadingYOU’VE GOT aHUS!
Read more about the article LONG aHUS

LONG aHUS

  • Post author:Len Woodward
  • Post published:February 17, 2022
  • Post category:News
  • Post comments:1 Comment

aHUS alliance Global Action has previously brought up the concept of "Long aHUS " in its articles during the COVID pandemic.…

Continue ReadingLONG aHUS
Read more about the article Advocacy punching  above its aHUS weight

Advocacy punching above its aHUS weight

  • Post author:Len Woodward
  • Post published:January 16, 2022
  • Post category:News
  • Post comments:0 Comments

There is so much chat these days about what things should be like after the pandemic. Though it does seem at…

Continue ReadingAdvocacy punching above its aHUS weight
Read more about the article TÜRKİYE’DE Kİ; aHÜS H; ASTALIĞINA GENEL BİR BAKIŞ!

TÜRKİYE’DE Kİ; aHÜS H; ASTALIĞINA GENEL BİR BAKIŞ!

  • Post author:Len Woodward
  • Post published:January 5, 2022
  • Post category:News
  • Post comments:0 Comments

Atipik Hemolitik Üremik Sendrom kısaca aHÜS, vücudumuzun bağışıklık sisteminin ana elemanlarından olan ana savunma sisteminin de ki bir parçanın regülasyon bozukluğu…

Continue ReadingTÜRKİYE’DE Kİ; aHÜS H; ASTALIĞINA GENEL BİR BAKIŞ!
Read more about the article COVID and aHUS at the end of 2021

COVID and aHUS at the end of 2021

  • Post author:Len Woodward
  • Post published:December 31, 2021
  • Post category:News
  • Post comments:0 Comments

As the year ends we are still living with COVID. It seems like it is never ending. And it is and…

Continue ReadingCOVID and aHUS at the end of 2021
Read more about the article aHUS Trial Watch 14

aHUS Trial Watch 14

  • Post author:Len Woodward
  • Post published:November 27, 2021
  • Post category:News
  • Post comments:0 Comments

A trial has been designed by Alexion to examine the efficacy of Ravulizumab to treat those with a Thrombotic Microngiopathy ,…

Continue ReadingaHUS Trial Watch 14
Read more about the article One genetic problem but two diseases

One genetic problem but two diseases

  • Post author:Len Woodward
  • Post published:November 18, 2021
  • Post category:News
  • Post comments:0 Comments

Take "diacylglycerol kinase " and add a "syndrome" throw in a letter from the Greek alphabet " ε" and you have…

Continue ReadingOne genetic problem but two diseases
Read more about the article Atypical HUS Research: What’s New OCT 2021

Atypical HUS Research: What’s New OCT 2021

  • Post author:ahusalliance
  • Post published:October 28, 2021
  • Post category:News
  • Post comments:0 Comments

We marked aHUS Awareness Day (24 Sept) with our own advocacy-based research, releasing the 1st report of data and insights from…

Continue ReadingAtypical HUS Research: What’s New OCT 2021
Read more about the article Ravulizumab -Superwoman juice?

Ravulizumab -Superwoman juice?

  • Post author:Len Woodward
  • Post published:October 18, 2021
  • Post category:News
  • Post comments:0 Comments

The portrayal of rare diseases in the media can be both positive and detrimental. It can be sensational and political. It…

Continue ReadingRavulizumab -Superwoman juice?
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