Trial Watch 22 – Iptacopan and Crovalimab for aHUS
Not much heard about these trials these days and when they will conclude and move to the approval stage. The aHUS…
Are some “new” ravulizumab adverse events a worry for aHUS patients?
Side effects from ravulizumab treatment can be a worry. They are listed in the patient leaflet that comes with every vial…
A month of ravulizumab use adverse events
The Food and Drugs Administration has a database of adverse events (AEs) reported for all the drugs in use. It is…
Plain language summary of an aHUS Clinical Trial
This is a plain language summary of the final article to be published about Stopping Eculizumab Treatment Safely Clinical Trial. The…
Since You Asked: aHUS NOMENCLATURE
The topic of ‘changing the name of aHUS’ crops up regularly, so since people keep asking here are details which might…
Rare Disease Day 2026: Many Voices, One Global Movement
Rare Disease Day 2026: Many Voices, One Global Movement Since 2015, the aHUS Alliance Global Action team has been right there…
The rapid development of aHUS knowledge and its treatment in China
Until eight years ago China had no policy on the care of people with rare diseases. There were discussions about it…
Finding neighbours in aHUS Town Second Group
The second group of 30 countries in which there could be collectively around 2250 aHUS patients is listed below. The aHUS…
An exchange about aHUS genetic counselling
Hi I don't have the aHUS gene. Hi That is good, but there is no aHUS gene so you could not…