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Read more about the article EURenOmics explained

EURenOmics explained

  • Post author:ahusalliance
  • Post published:April 12, 2017
  • Post category:Featured
  • Post comments:0 Comments

A European rare kidney disease consortium is working on diagnostic tools and treatments for rare kidney diseases like aHUS. The initiative…

Continue ReadingEURenOmics explained
Read more about the article Affordable Care makes sense everywhere

Affordable Care makes sense everywhere

  • Post author:ahusalliance
  • Post published:April 11, 2017
  • Post category:Featured
  • Post comments:0 Comments

Access to heath care and treatment is a global concern for all those with chronic, life threatening heath conditions; probably even…

Continue ReadingAffordable Care makes sense everywhere
Read more about the article Before or after , with or without- transplant decisions need data

Before or after , with or without- transplant decisions need data

  • Post author:ahusalliance
  • Post published:April 9, 2017
  • Post category:Featured
  • Post comments:0 Comments

Anyone, who has been involved in aHUS patient advocacy for some time, will be aware of the special place that those…

Continue ReadingBefore or after , with or without- transplant decisions need data
Read more about the article Life and legacy bonds for all with aHUS

Life and legacy bonds for all with aHUS

  • Post author:ahusalliance
  • Post published:April 7, 2017
  • Post category:Featured
  • Post comments:0 Comments

In the reception area of Alexion's HQ in New Haven Connecticut there is a piece of conceptual art. ( see the…

Continue ReadingLife and legacy bonds for all with aHUS
Read more about the article Research & Education: Keys to aHUS Answers

Research & Education: Keys to aHUS Answers

  • Post author:ahusalliance
  • Post published:April 6, 2017
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

Especially with very rare diseases such as atypical HUS, medical research and education efforts are keys to unlocking information that’s critical…

Continue ReadingResearch & Education: Keys to aHUS Answers
Read more about the article Be the clinician and diagnose aHUS

Be the clinician and diagnose aHUS

  • Post author:ahusalliance
  • Post published:April 2, 2017
  • Post category:Featured
  • Post comments:0 Comments

The previous blog illustrates the difficulty of diagnosing aHUS. From the basic information about some patients have a go at diagnosing…

Continue ReadingBe the clinician and diagnose aHUS
Read more about the article Is it aHUS?    Perhaps it’s TTP, STEC-HUS, or Another TMA

Is it aHUS?   Perhaps it’s TTP, STEC-HUS, or Another TMA

  • Post author:ahusalliance
  • Post published:April 1, 2017
  • Post category:Featured
  • Post comments:0 Comments

  Feeling sick is difficult enough without going to a doctor’s appointment and learning that the diagnosis might possibly be the…

Continue ReadingIs it aHUS?   Perhaps it’s TTP, STEC-HUS, or Another TMA
Read more about the article Challenge of Secondary aHUS diagnosis

Challenge of Secondary aHUS diagnosis

  • Post author:ahusalliance
  • Post published:March 30, 2017
  • Post category:Featured
  • Post comments:0 Comments

A question ,which featured in the Rare Diseases Day video, will have resonated with many aHUS families as it was about…

Continue ReadingChallenge of Secondary aHUS diagnosis
Read more about the article Hope for aHUS in India?

Hope for aHUS in India?

  • Post author:ahusalliance
  • Post published:March 30, 2017
  • Post category:Featured
  • Post comments:0 Comments

Tomorrow, and the day after, a significant event is taking place in New Dehli which is of great importance to aHUS Patients…

Continue ReadingHope for aHUS in India?
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