Before or after , with or without- transplant decisions need data
Anyone, who has been involved in aHUS patient advocacy for some time, will be aware of the special place that those…
Life and legacy bonds for all with aHUS
In the reception area of Alexion's HQ in New Haven Connecticut there is a piece of conceptual art. ( see the…
Research & Education: Keys to aHUS Answers
Especially with very rare diseases such as atypical HUS, medical research and education efforts are keys to unlocking information that’s critical…
Be the clinician and diagnose aHUS
The previous blog illustrates the difficulty of diagnosing aHUS. From the basic information about some patients have a go at diagnosing…
Is it aHUS? Perhaps it’s TTP, STEC-HUS, or Another TMA
Feeling sick is difficult enough without going to a doctor’s appointment and learning that the diagnosis might possibly be the…
Challenge of Secondary aHUS diagnosis
A question ,which featured in the Rare Diseases Day video, will have resonated with many aHUS families as it was about…
Hope for aHUS in India?
Tomorrow, and the day after, a significant event is taking place in New Dehli which is of great importance to aHUS Patients…
Things can get better
Most who have had an encounter with aHUS will be familiar with the anxiety and uncertainty felt by Deborah in her…
Parents Want to Know about aHUS Childrens’ Issues
Exploring your Questions, Rare Disease Day 2017 Children living with the rare disease atypical HUS are first and foremost children. Despite…
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