Vision Issues & aHUS
It’s difficult for rare disease patients to find information about their condition and even more so for patients with medical…
Can we be strong after aHUS?
Two questions in the Rare Disease Day video address the same issue but from different perspectives. Pepe of Madrid Spain…
Can the price of eculizumab be justified?
Article No. 4 March 2017 ( See also article on affordability of Ravulizumab at this LINK ) Severine of…
Treatment for all with aHUS?
A question which featured a number of times in the Rare Disease Day video was about access to complement inhibitors for…
A cure for aHUS?
There is another very good question from Hyde Talbot of Cumming Georgia in the video ( click here to view…
THE aHUS PATIENT RESEARCH AGENDA 2017
The Rare Disease Day video, which was the latest collaboration project of the aHUS alliance, and in which 75 aHUS adults…
Just how many aHUS patients are there?
Rare Disease Day 2017 is over , the aHUS Global Video ( see here) was a tremendous success and, as has…
From Russia : Research and Cure!
Today the world will be celebrating the 10th edition of Rare Disease Day. This time, the event's main topic is "Research".…
The aHUS Global Video on Rare Disease Day 2017
It is Rare Disease Day 2017 . The video that the global aHUS community has been contributing to has been released…
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