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Read more about the article Atypical HUS – an Interview with Dr Brad Lewis of Machaon Diagnostics

Atypical HUS – an Interview with Dr Brad Lewis of Machaon Diagnostics

  • Post author:Linda Burke
  • Post published:July 17, 2022
  • Post category:Featured
  • Post comments:0 Comments

We’re pleased to feature this interview with Dr Brad Lewis, Medical Director of Machaon Diagnostics. A hematologist with background in biochemistry…

Continue ReadingAtypical HUS – an Interview with Dr Brad Lewis of Machaon Diagnostics
Read more about the article That was the aHUS Rare Disease Day Video that was

That was the aHUS Rare Disease Day Video that was

  • Post author:Len Woodward
  • Post published:May 20, 2022
  • Post category:Featured
  • Post comments:0 Comments

65 questions, 29 article blogs with answers to the questions published between 7 March and 16 May and over 300 views…

Continue ReadingThat was the aHUS Rare Disease Day Video that was
Read more about the article Integrating a greater aHUS patient voice

Integrating a greater aHUS patient voice

  • Post author:Len Woodward
  • Post published:May 16, 2022
  • Post category:Featured
  • Post comments:0 Comments

A final question in the RDD2022 video series on how to integrate a patient voice of experience into aHUS Pharma and…

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Read more about the article Difference in aHUSs

Difference in aHUSs

  • Post author:Len Woodward
  • Post published:May 13, 2022
  • Post category:Featured
  • Post comments:0 Comments

This question about difference in disease triggers and treatments from Jeff did not feature in the RDD2022 video but was given…

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Read more about the article Future effects of aHUS and its treatment

Future effects of aHUS and its treatment

  • Post author:Len Woodward
  • Post published:May 11, 2022
  • Post category:Featured
  • Post comments:0 Comments

A number of questions in the RDD2022 video are about what will happen to patients in the future due to the…

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Read more about the article aHUS care pathway

aHUS care pathway

  • Post author:Len Woodward
  • Post published:May 10, 2022
  • Post category:Featured
  • Post comments:0 Comments

The care pathway for aHUS patients has been looked at in detail in Global Action’s Diagnosis Process Study ( for reports…

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Read more about the article aHUS limitations

aHUS limitations

  • Post author:Len Woodward
  • Post published:May 8, 2022
  • Post category:Featured
  • Post comments:0 Comments

Zinovieva asked two related questions in the RDD 2020 video The issues of what provokes ( or triggers) the development of…

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Read more about the article aHUS Patient information and mutual support

aHUS Patient information and mutual support

  • Post author:Len Woodward
  • Post published:May 5, 2022
  • Post category:Featured
  • Post comments:2 Comments

One thing is for certain, there is much more information available about aHUS because of the internet than there was even…

Continue ReadingaHUS Patient information and mutual support
Read more about the article Can an unknown aHUS  susceptibility be passed on?

Can an unknown aHUS susceptibility be passed on?

  • Post author:Len Woodward
  • Post published:May 2, 2022
  • Post category:Featured
  • Post comments:0 Comments

Usually inheritance questions about a HUS relate to genetic susceptibility mutations/variants/markers that are known. This one is different because it is…

Continue ReadingCan an unknown aHUS susceptibility be passed on?
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