If the name aHUS is to be changed and it remains a big IF as it remains in a state of flux, then the aHUS Day 20126 consultation of patient and family is the only open and transparent evidence about what they about the idea.
aHUS alliance Global Action has written an article with a comprehensive analysis of the results of the aHUS Day Poll, together with a discussion of the implications and which presents key findings and conclusions. It is being distributed d far and wide and will along with the video be presented at coming meetings by Jeff Schmidt.
The full report can be read by scrolling down or clicking on the link or downloading the pdf below :
* Co authors of the article include Linda Burke, Taylor Coffman , Jeff Schmidt .Kamal Shah and Len Woodward for aHUS alliance Global Action.
Article No. 827
