Grumbling aHUS
Hi my aHUS just grumbles. Hi just grumbles you say. Yes it like smoulders not going out, then bubbles up ,…
More countries for Global aHUS Town
Since our last report on Global aHUS Town very little has changed in the number of countries who are now aHUS…
Helping another TMA’s Initiative- CAPS
CAPS or Catastrophic Antiphospholipid Syndrome is an autoimmune and kidney disease which shares the same experience of thrombotic microangiopathy with aHUS/…
ERKNET and TMA patients in Europe
Very little is heard from ERKNet (European Rare Kidney Disease Network) these days. Global Action used to have articles about its…
The 2024 Global aHUS Poll Progress
When conceived it was known from previous experiences that having a global poll about aHUS was going to be a major…
Not too little not too much complement
Complement is known to be a collection of components which act individually and collectively to protect the body from something foreign…
To vaccinate or not to vaccinate with aHUS
I am not going to have a vaccination. Fair enough vaccinations are not mandatory but why? aHUS Oh you have aHUS.…
A month of ravulizumab use adverse events
The Food and Drugs Administration has a database of adverse events (AEs) reported for all the drugs in use. It is…
The rapid development of aHUS knowledge and its treatment in China
Until eight years ago China had no policy on the care of people with rare diseases. There were discussions about it…
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