The global poll of aHUS patients’ experience
Work began on the global poll of aHUS patients experiences of living with aHUS in early Autumn 2024. The Poll has…
aHUS the micro-clot at ground zero
We all know that aHUS is the result of an overactive complement system naturally creating its weapon the membrane attack complex…
Every aHUS patient is in there somewhere.
aHUS alliance Global Action came up with this table describing aHUS patients position within a matrix of triggers and mutations guiding…
Thailand enters Global aHUS Town
A chance meeting at an American Kidney Fund conference a few days ago alerted us to aHUS patients in Thailand. So…
What aHUS patients think about a name change
If the name aHUS is to be changed and it remains a big IF as it remains in a state of…
New name plans what the aHUS community think about them
It is aHUS Awareness Day (it started in Tuvalu first!) . The theme for this Awareness Day is the plan for…
Cause v Effect- cTMA v aHUS
This image illustrates what the debate about renaming our disease is about- cause or effect. On the left is the complement…
A key issue why a name change will impact – Taylor and Len chat
Taylor Coffman and Len Woodward are two public aHUS patient advocates who write about aHUS and the patient experience of living…
aHUS a Physician Patient Partnership or Not
Not many people will have heard of Donal O'Donoghue, He was a nephrologist from the North of England. He was a…
- 1
- 2
- 3
- 4
- …
- 13
- Go to the next page