Patients as Partners
Patients are at the heart of healthcare. Patients are the recipients of medical care, and the participants in research…
Patients are at the heart of healthcare. Patients are the recipients of medical care, and the participants in research…
What does the term ‘wellness’ mean if you’re a patient with a very rare disease or chronic illness? At…
A doctor’s waiting area and exam rooms today look much like they appeared in the 1950s. Patients used to sit in…
The aHUS alliance website has reached its first anniversary. Although some of the first blogs have dates preceding 28 May 2016…
Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS patients get to know and understand…
Exploring your Questions, Rare Disease Day 2017 Children living with the rare disease atypical HUS are first and foremost children. Despite…
It’s difficult for rare disease patients to find information about their condition and even more so for patients with medical…
Below are some aHUS Alliance images for Rare Disease Day, please visit our social media for a comprehensive array of current…
Some countries use the term ‘carer’, while other nations prefer the word ‘caregiver’ to describe those individuals who fill the…