Is an aHUS patient research agenda worthwhile?
aHUS patients have a global research agenda. Work began on it in 2015 and after three iterations involving more than 200…
aHUS patients have a global research agenda. Work began on it in 2015 and after three iterations involving more than 200…
Immunocompromisation is a hall mark of aHUS. For those who are predisposed to it and for those who have had it…
In crime programmes when someone lands on the ground from a great height the question asked is “were they pushed or…
We all want aHUS patients to survive to old age, but what about those whose aHUS onset is later in life.…
WWW.AHUSALLIANCEGLOBALACTION.ORG 18 March 2023 aHUS PATIENTS' VIEWS ON THE ATTRIBUTION OF ADVERSE EVENTS /SIDE EFFECTS EXPERIENCED DUE TO EITHER THEIR PRIMARY…
I know it should not matter so much but whenever I see incidence and prevalence figures for aHUS in articles etc,…
Listening to some aHUS people on social media there is a sense that all are not satisfied with what is happening…
aHUS patients in clinical trials are monitored for adverse events and personal outcomes experience while on treatment. Adverse events have been…
Kamal Shah is a Director/Trustee of aHUS alliance Global Action. He first had aHUS over 25 years ago. It was triggered…