Skip to content
aHUS Alliance Action
  • Home
  • About aHUS Alliance
  • Articles
  • Info Centre
  • Patient Associations
  • Clinicians
  • Contact Us
  • Donate
  • Toggle website search
Search this website
Menu Close
  • Home
  • About aHUS Alliance
  • Articles
  • Info Centre
  • Patient Associations
  • Clinicians
  • Contact Us
  • Donate
  • Toggle website search

rare disease

  1. Home>
  2. News & Blogs>
  3. rare disease>
  4. Page 2
Read more about the article Real world data on aHUS treatment discontinuation

Real world data on aHUS treatment discontinuation

  • Post author:Len Woodward
  • Post published:April 7, 2025
  • Post category:News
  • Post comments:0 Comments

A few days ago an article appeared in The Lancet which claims to be the largest real world analysis of complement…

Continue ReadingReal world data on aHUS treatment discontinuation
Read more about the article TMAs -How many are there?

TMAs -How many are there?

  • Post author:Len Woodward
  • Post published:March 30, 2025
  • Post category:Featured
  • Post comments:0 Comments

The Primary aHUS community now understands that there is no accurate record of how many "aHUS" patients there are , but…

Continue ReadingTMAs -How many are there?
Read more about the article Patients from around the world discuss aHUS name change

Patients from around the world discuss aHUS name change

  • Post author:Len Woodward
  • Post published:March 20, 2025
  • Post category:Featured
  • Post comments:0 Comments

aHUS patients have been deliberately not engaged in the proposal to change the name aHUS into a plethora of thrombotic microangiopathy…

Continue ReadingPatients from around the world discuss aHUS name change
Read more about the article People have always had Primary aHUS?

People have always had Primary aHUS?

  • Post author:Len Woodward
  • Post published:March 9, 2025
  • Post category:Featured
  • Post comments:0 Comments

The disease now called Primary aHUS has existed as long as humans had complement and coagulation systems. Dinosaurs might have had…

Continue ReadingPeople have always had Primary aHUS?
Read more about the article aHUS Patient Numbers :RDD 25 Video Insights

aHUS Patient Numbers :RDD 25 Video Insights

  • Post author:Len Woodward
  • Post published:March 6, 2025
  • Post category:Featured
  • Post comments:0 Comments

Remember in the COVID years of 2020 and 2021 the media was plastered with COVID patient numbers. They were ubiquitous and…

Continue ReadingaHUS Patient Numbers :RDD 25 Video Insights
Read more about the article aHUS on rare disease day 2025

aHUS on rare disease day 2025

  • Post author:Len Woodward
  • Post published:February 28, 2025
  • Post category:Events
  • Post comments:0 Comments

This is what Grok AI says about aHUS alliance efforts have been to promote Rare Disease Day 2025 awreness, 1. **Video…

Continue ReadingaHUS on rare disease day 2025
Read more about the article FDA has a record about aHUS

FDA has a record about aHUS

  • Post author:Len Woodward
  • Post published:January 10, 2025
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

In 2023 a group from the aHUS community met with the FDA to talk to them about living with aHUS and…

Continue ReadingFDA has a record about aHUS
Read more about the article RDD25:  MORE THAN YOU CAN IMAGINE!

RDD25:  MORE THAN YOU CAN IMAGINE!

  • Post author:Len Woodward
  • Post published:January 4, 2025
  • Post category:Uncategorized
  • Post comments:0 Comments

Thank You to all Participants! View the completed Rare Disease Day 2024 project here http://bit.ly/RDday2025aHUS The background to the video is…

Continue ReadingRDD25:  MORE THAN YOU CAN IMAGINE!
Read more about the article Is a patient organisation still needed for aHUS?

Is a patient organisation still needed for aHUS?

  • Post author:Len Woodward
  • Post published:January 1, 2025
  • Post category:Uncategorized
  • Post comments:0 Comments

As another year turns in the aHUS world it is perhaps a time to reflect once more on the mission of…

Continue ReadingIs a patient organisation still needed for aHUS?
  • Go to the previous page
  • 1
  • 2
  • 3
  • 4
  • 5
  • …
  • 10
  • Go to the next page

Quick Links

  • Home
  • About aHuS Alliance
  • Articles
  • Info Center
  • Patient Associations
  • Clinicians
  • Contact Us
  • Donate

Subscribe to our Newsletter

Get all the latest news from the aHUS world. For more information:

Email is required Email is not valid
Thanks for your subscription.
Failed to subscribe, please contact admin.

aHUS Keep Connected

Connect with us

Facebook-f Twitter Instagram Linkedin Envelope
Copyright 2025 - © aHUS alliance