What aHUS patients think about a name change
If the name aHUS is to be changed and it remains a big IF as it remains in a state of…
A key issue why a name change will impact – Taylor and Len chat
Taylor Coffman and Len Woodward are two public aHUS patient advocates who write about aHUS and the patient experience of living…
New aHUS name it is like squaring the circle
Hey what's new? I have found out something new , did you know that aHUS is not the official name for…
Would experts compromise on a new name for aHUS (1)
Is there room at this stage for some compromise on a new name for aHUS? Would something like cTMA-HUS or even…
Have you voted yet?
Do you want the name aHUS to go? Because they are going to change it. Do you want to have your…
TMA-Semantics are important
Article No. 402 12 December 2020 Just over a year ago aHUS Global Action featured a series of articles "aHUS is…
A global patient vision for aHUS?
Article No. 325 29 February 2020 20/20 vision is about clarity of sight. Perfect vision. It’s a measure and is not…