Grumbling aHUS
Hi my aHUS just grumbles. Hi just grumbles you say. Yes it like smoulders not going out, then bubbles up ,…
Knowledge of aHUS – a Mountain to Climb
When it comes to knowledge of rare diseases patients are frequently critical of the level of knowledge of their treating clinicians.…
A CALL for aHUS/cTMA community support for an aHUS Day event.
aHUS Day will be on 24th September. It is for all the aHUS/cTMA community. The day has been set to raise…
More countries for Global aHUS Town
Since our last report on Global aHUS Town very little has changed in the number of countries who are now aHUS…
ERKNET and TMA patients in Europe
Very little is heard from ERKNet (European Rare Kidney Disease Network) these days. Global Action used to have articles about its…
Why a vaccine is such a controversy in aHUS/cTMA
Vaccines simulate a specific infection and through a well developed process stimulate the adaptive immune system to create antibodies and killer…
This aHUS website’s 800th blog article
Reaching the 800th article on this website is a remarkable achievement. It has taken 10 years since the website was launched.…
The 2024 Global aHUS Poll Progress
When conceived it was known from previous experiences that having a global poll about aHUS was going to be a major…
cTMA but not aHUS
The name atypical hemolytic uremic syndrome is being replaced. Complement mediated thrombotic microangiopathy is becoming a popular choice. The first term…
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