aHUS – Stopping eculizumab treatment safely
For aHUS patients stopping eculizumab (or even Ravulizumab) treatment is an important but emotive issue. Having had the treatment when seriously…
Algorithms: Steps to Diagnose aHUS & other TMAs
Algorithms to diagnose aHUS apart from other syndromes of TMA exist, but why do these tools with problem solving steps seem under-utilized?
Closing the CaHUS knowledge gap
Two days ago an article appeared in BLOOD journal which was the result of a comprehensive analysis of data about patients…
A rose by any other name revisited
One of the most widely read articles on this website has been an article about aHUS name The rose article was…
ADAMTS13 Testing: Fast 4 TMA Program
USTMA has partnered with Machaon Diagnostics to offer free ADAMTS13 testing through the new ‘Fast 4 TMA’ program for patients in…
Is it time to have aHUS
Anyone who can get aHUS can get it any time. That makes sense the disease is just the product of a…
aHUS Community Advisory Board News
Two updates on the Global aHUS Community Advisory Board. There is some information about the inaugural set of CAB / PHARMA…
aHUS trial watch 17- NM8074
Another trial of a complement inhibitor for aHUS treatment has been announced , it is for something currently called NM8074. Full…
A call for interest in joining the aHUS CAB
This time last year a couple of dozen people with an interest in global aHUS advocacy were discussing and deciding on…
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