To vaccinate or not to vaccinate with aHUS
I am not going to have a vaccination. Fair enough vaccinations are not mandatory but why? aHUS Oh you have aHUS.…
Answering and questioning the KDIGO aHUS Questions ( Part 1)
KDIGO met again to progress, through controversial means, knowledge of aHUS, or what ever it is called these days. There were…
An ill person happens to “walk” into a Hospital and is having an onset of aHUS…
For a person experiencing aHUS (atypical hemolytic uremic syndrome / C-TMA/cTMA) onset who arrives at a hospital, acute stabilization (often with…
Managing Anti-Complement factor H Auto Antibodies version of aHUS
aHUS patients are well aware of Anti-Complement Factor H Auto Antibodies can cause aHUS. I have heard them called Anti factor…
Serious Infections- aHUS patients are their own early warning system
An article appeared last month about practical things that need to be done to limit the risk for complement inhibitor users,…
Plain language summary of an aHUS Clinical Trial
This is a plain language summary of the final article to be published about Stopping Eculizumab Treatment Safely Clinical Trial. The…
Since You Asked: aHUS NOMENCLATURE
The topic of ‘changing the name of aHUS’ crops up regularly, so since people keep asking here are details which might…
The rapid development of aHUS knowledge and its treatment in China
Until eight years ago China had no policy on the care of people with rare diseases. There were discussions about it…
An exchange about aHUS genetic counselling
Hi I don't have the aHUS gene. Hi That is good, but there is no aHUS gene so you could not…
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