The global poll of aHUS patients’ experience
Work began on the global poll of aHUS patients experiences of living with aHUS in early Autumn 2024. The Poll has…
Parental Germline Mosaicism: What It Means for aHUS Families
When a child is diagnosed with atypical haemolytic uraemic syndrome (aHUS), also known as complement-mediated thrombotic microangiopathy (cTMA), genetic testing often…
Triggering conditions
In this model of aHUS onset and relapse the two key variables are patient genetic predisposition and the "second hit"- ;.e.…
aHUS the micro-clot at ground zero
We all know that aHUS is the result of an overactive complement system naturally creating its weapon the membrane attack complex…
Genetic mutations strong or weak
In this model of the aHUS patient the concept of strong or weak aHUS disease causing genetic mutations is deployed not…
Every aHUS patient is in there somewhere.
aHUS alliance Global Action came up with this table describing aHUS patients position within a matrix of triggers and mutations guiding…
Thailand enters Global aHUS Town
A chance meeting at an American Kidney Fund conference a few days ago alerted us to aHUS patients in Thailand. So…
What aHUS patients think about a name change
If the name aHUS is to be changed and it remains a big IF as it remains in a state of…
New name plans what the aHUS community think about them
It is aHUS Awareness Day (it started in Tuvalu first!) . The theme for this Awareness Day is the plan for…
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