New aHUS name it is like squaring the circle
Hey what's new? I have found out something new , did you know that aHUS is not the official name for…
Would experts compromise on a new name for aHUS (1)
Is there room at this stage for some compromise on a new name for aHUS? Would something like cTMA-HUS or even…
Primary and Secondary aHUS? Does it really matter?
The question should be why do some triggers kick off a complement only TMA ( Primary aHUS ) and yet can…
Grumbling aHUS
Hi my aHUS just grumbles. Hi just grumbles you say. Yes it like smoulders not going out, then bubbles up ,…
Knowledge of aHUS – a Mountain to Climb
When it comes to knowledge of rare diseases patients are frequently critical of the level of knowledge of their treating clinicians.…
A CALL for aHUS/cTMA community support for an aHUS Day event.
Renaming aHUS – What’s Your Vote? Watch the project video & share its link: https://bit.ly/aHUSday2026video The 2026 aHUS Awareness Day project…
More countries for Global aHUS Town
Since our last report on Global aHUS Town very little has changed in the number of countries who are now aHUS…
ERKNET and TMA patients in Europe
Very little is heard from ERKNet (European Rare Kidney Disease Network) these days. Global Action used to have articles about its…
Why a vaccine is such a controversy in aHUS/cTMA
Vaccines simulate a specific infection and through a well developed process stimulate the adaptive immune system to create antibodies and killer…