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Read more about the article RDD23 VIDEO – RESULTS REPORT

RDD23 VIDEO – RESULTS REPORT

  • Post author:Len Woodward
  • Post published:March 18, 2023
  • Post category:Featured
  • Post comments:0 Comments

WWW.AHUSALLIANCEGLOBALACTION.ORG 18 March 2023 aHUS PATIENTS' VIEWS ON THE ATTRIBUTION OF ADVERSE EVENTS /SIDE EFFECTS EXPERIENCED DUE TO EITHER THEIR PRIMARY…

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Read more about the article aHUS First Since COVID

aHUS First Since COVID

  • Post author:Len Woodward
  • Post published:March 17, 2023
  • Post category:News
  • Post comments:0 Comments

Zoom has helped with keeping aHUS advocacy going during the restrictions resulting from the COVID pandemic. Starting a zoom meeting always…

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Read more about the article aHUS Community Advisory Board News

aHUS Community Advisory Board News

  • Post author:Len Woodward
  • Post published:February 28, 2023
  • Post category:News
  • Post comments:0 Comments

Two updates on the Global aHUS Community Advisory Board. There is some information about the inaugural set of CAB / PHARMA…

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Read more about the article aHUS trial watch 17- NM8074

aHUS trial watch 17- NM8074

  • Post author:Len Woodward
  • Post published:February 9, 2023
  • Post category:News
  • Post comments:0 Comments

Another trial of a complement inhibitor for aHUS treatment has been announced , it is for something currently called NM8074. Full…

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Read more about the article A call for interest in joining the aHUS CAB

A call for interest in joining the aHUS CAB

  • Post author:Len Woodward
  • Post published:February 6, 2023
  • Post category:News
  • Post comments:0 Comments

This time last year a couple of dozen people with an interest in global aHUS advocacy were discussing and deciding on…

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Read more about the article aHUS is confusing

aHUS is confusing

  • Post author:Len Woodward
  • Post published:February 4, 2023
  • Post category:News
  • Post comments:0 Comments

Sometimes it can be confusing being an aHUS patient. Even to knowing whether you are really an aHUS patient. Even if…

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Read more about the article aHUS what is really happening?

aHUS what is really happening?

  • Post author:Len Woodward
  • Post published:January 21, 2023
  • Post category:Featured/News
  • Post comments:0 Comments

Listening to some aHUS people on social media there is a sense that all are not satisfied with what is happening…

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Read more about the article HST TMA Is It aHUS ?

HST TMA Is It aHUS ?

  • Post author:Len Woodward
  • Post published:December 14, 2022
  • Post category:Featured
  • Post comments:0 Comments

- An Hematopoietic Stem Cell Transplant (HSCT) is a way to treat some malignant and benign diseases. The transplant replaces disease…

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Read more about the article Study of the aHUS Diagnosis Process- the “whys”, “whats” and “hows”

Study of the aHUS Diagnosis Process- the “whys”, “whats” and “hows”

  • Post author:Len Woodward
  • Post published:December 8, 2022
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

It is now over two years ago that Global Action began a major study of the aHUS Diagnosis Process, it is…

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