What aHUS patients think about a name change
If the name aHUS is to be changed and it remains a big IF as it remains in a state of…
aHUS Care in India: Moving to a’Hub and Spoke’ Model
Though atypical hemolytic uremic syndrome (aHUS) affects only 2 to 9 people per million globally, treatment strategies must include regional considerations…
New name plans what the aHUS community think about them
It is aHUS Awareness Day (it started in Tuvalu first!) . The theme for this Awareness Day is the plan for…
Cause v Effect- cTMA v aHUS
This image illustrates what the debate about renaming our disease is about- cause or effect. On the left is the complement…
Atypical HUS Facts: 2026 – Sept – 2027
Atypical Hemolytic Uremic Syndrome – a Rare Disease Solid, independent information on this rare disease is genuinely hard to find, and…
Have you voted yet?
Do you want the name aHUS to go? Because they are going to change it. Do you want to have your…
Grumbling aHUS
Hi my aHUS just grumbles. Hi just grumbles you say. Yes it like smoulders not going out, then bubbles up ,…
Knowledge of aHUS – a Mountain to Climb
When it comes to knowledge of rare diseases patients are frequently critical of the level of knowledge of their treating clinicians.…
A CALL for aHUS/cTMA community support for an aHUS Day event.
Renaming aHUS – What’s Your Vote? Watch the project video & share its link: https://bit.ly/aHUSday2026video The 2026 aHUS Awareness Day project…
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