The global poll of aHUS patients’ experience
Work began on the global poll of aHUS patients experiences of living with aHUS in early Autumn 2024. The Poll has…
Triggering conditions
In this model of aHUS onset and relapse the two key variables are patient genetic predisposition and the "second hit"- ;.e.…
Precise and tailored- needed or not- surviving to thriving
It is fashionable these days to talk about precision medicine and tailor made/ personalised medicine. Whilst it is easy to say…
Every aHUS patient is in there somewhere.
aHUS alliance Global Action came up with this table describing aHUS patients position within a matrix of triggers and mutations guiding…
Thailand enters Global aHUS Town
A chance meeting at an American Kidney Fund conference a few days ago alerted us to aHUS patients in Thailand. So…
What aHUS patients think about a name change
If the name aHUS is to be changed and it remains a big IF as it remains in a state of…
Who are the aHUS persons requiring specific treatment.
It is clear that amongst the hullabaloo about aHUS renaming it was not those aHUS persons with known complement mutations, or…
New name plans what the aHUS community think about them
It is aHUS Awareness Day (it started in Tuvalu first!) . The theme for this Awareness Day is the plan for…
Cause v Effect- cTMA v aHUS
This image illustrates what the debate about renaming our disease is about- cause or effect. On the left is the complement…
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