Another chat about vaccinations and aHUS/cTMA
Hi I heard your recent vaccination conversation with someone about deciding whether to vaccinate or not when a predisposition to aHUS…
Not too little not too much complement
Complement is known to be a collection of components which act individually and collectively to protect the body from something foreign…
To vaccinate or not to vaccinate with aHUS
I am not going to have a vaccination. Fair enough vaccinations are not mandatory but why? aHUS Oh you have aHUS.…
Answering and questioning the KDIGO aHUS Questions ( Part 1)
KDIGO met again to progress, through controversial means, knowledge of aHUS, or what ever it is called these days. There were…
An ill person happens to “walk” into a Hospital and is having an onset of aHUS…
For a person experiencing aHUS (atypical hemolytic uremic syndrome / C-TMA/cTMA) onset who arrives at a hospital, acute stabilization (often with…
Managing Anti-Complement factor H Auto Antibodies version of aHUS
aHUS patients are well aware of Anti-Complement Factor H Auto Antibodies can cause aHUS. I have heard them called Anti factor…
Serious Infections- aHUS patients are their own early warning system
An article appeared last month about practical things that need to be done to limit the risk for complement inhibitor users,…
A month of ravulizumab use adverse events
The Food and Drugs Administration has a database of adverse events (AEs) reported for all the drugs in use. It is…
Plain language summary of an aHUS Clinical Trial
This is a plain language summary of the final article to be published about Stopping Eculizumab Treatment Safely Clinical Trial. The…
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