An aHUS diagnosis, lucky or what?
It is hard to believe that it will soon be two years since the aHUS Diagnosis Process project began. It began…
It is hard to believe that it will soon be two years since the aHUS Diagnosis Process project began. It began…
The care pathway for aHUS patients has been looked at in detail in Global Action’s Diagnosis Process Study ( for reports…
Long term aHUS disease, diagnosis and treatment legacies on both physical and mental health have featured in two aHUS Patient Research…
A very important topic for many aHUS patients around the world with an unmet need. Patients have included the topic in…
The third article in the series about the aHUS Diagnosis Process is published today. Rare Disease Day 2022 The article covers…
Take "diacylglycerol kinase " and add a "syndrome" throw in a letter from the Greek alphabet " ε" and you have…
Can MedEd Encourage Specialists to Form TMA Teams? Tiny clots which form in the body’s small blood vessels - in brief,…
Ravulizumab is becoming a treatment of choice for aHUS in countries where access is funded. Though eculizumab will still have a…
The first report on what 227 aHUS patients from around the world told us about their aHUS diagnosis experience and their…