Every aHUS patient is in there somewhere.
aHUS alliance Global Action came up with this table describing aHUS patients position within a matrix of triggers and mutations guiding…
What aHUS patients think about a name change
If the name aHUS is to be changed and it remains a big IF as it remains in a state of…
Who are the aHUS persons requiring specific treatment.
It is clear that amongst the hullabaloo about aHUS renaming it was not those aHUS persons with known complement mutations, or…
New name plans what the aHUS community think about them
It is aHUS Awareness Day (it started in Tuvalu first!) . The theme for this Awareness Day is the plan for…
A key issue why a name change will impact – Taylor and Len chat
Taylor Coffman and Len Woodward are two public aHUS patient advocates who write about aHUS and the patient experience of living…
New aHUS name it is like squaring the circle
Hey what's new? I have found out something new , did you know that aHUS is not the official name for…
Have you voted yet?
Do you want the name aHUS to go? Because they are going to change it. Do you want to have your…
aHUS a Physician Patient Partnership or Not
Not many people will have heard of Donal O'Donoghue, He was a nephrologist from the North of England. He was a…
Primary and Secondary aHUS? Does it really matter?
The question should be why do some triggers kick off a complement only TMA ( Primary aHUS ) and yet can…
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