An ill person happens to “walk” into a Hospital and is having an onset of aHUS…
For a person experiencing aHUS (atypical hemolytic uremic syndrome / C-TMA/cTMA) onset who arrives at a hospital, acute stabilization (often with…
Managing Anti-Complement factor H Auto Antibodies version of aHUS
aHUS patients are well aware of Anti-Complement Factor H Auto Antibodies can cause aHUS. I have heard them called Anti factor…
Meningitis outbreak and living with aHUS
A meningitis outbreak should be of particular concern to those living with aHUS. A recent outbreak in the UK was described…
A month of ravulizumab use adverse events
The Food and Drugs Administration has a database of adverse events (AEs) reported for all the drugs in use. It is…
Plain language summary of an aHUS Clinical Trial
This is a plain language summary of the final article to be published about Stopping Eculizumab Treatment Safely Clinical Trial. The…
The rapid development of aHUS knowledge and its treatment in China
Until eight years ago China had no policy on the care of people with rare diseases. There were discussions about it…
An exchange about aHUS genetic counselling
Hi I don't have the aHUS gene. Hi That is good, but there is no aHUS gene so you could not…
C5 convertase blocked yet some how it is not-what aHUS is that?
It kind of makes you think how can someone, who has a complement inhibitor treatment that blocks their C5 from being…
Decision making in aHUS Health Recovery
The annual aHUS Awareness Day video ( see HERE) had a theme of best decision making in the recovery from an…
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